“Scleroderma research is important to me because our lives would be drastically different without the progress made thus far," says Tiffani P. (dx at age 18.) “At first, it was...
Read More
Join us for ILD Day! Plus: Tickets and sponsorships are now available for this year's CCHC. Read Now
Read More
In our recent communications survey, many of you asked for more support around managing diet and nutrition with scleroderma—especially for GI symptoms that can affect daily life. We heard you....
Read More
Missed the live event? The full recording of the recent interstitial lung disease (ILD)-focused webinar, "Scleroderma and the Lungs: A Spotlight on ILD" is now accessible for viewing on the...
Read More
The Scleroderma Research Foundation was proud to participate as a Strategic Collaborator in the inaugural meeting of Vie Ventures’ Therapeutics Advisory Council (TAC), held September 9 in New York City....
Read More
On August 25, Ally’s Allies held their 3rd Annual Golfing for a Cure—and it was their biggest yet! With 160 golfers participating, the event raised over $25,000 to support scleroderma...
Read More
“My experience with interstitial lung disease (ILD) didn’t start with a diagnosis—it started with a feeling,” Joseph W. recalls. “Back in middle school, around 2009, I was active in sports...
Read More
Want to know the latest updates in scleroderma research? Find out at SPIN’s upcoming online event! 🔬 Join the Scleroderma Patient-centered Intervention Network (SPIN) for “What’s New in Scleroderma Research:...
Read More
Cool Comedy • Hot Cuisine (CCHC) is back—and this year, we’re honoring Adam Duritz of Counting Crows with the Bob Saget Legacy Award! 🎤✨ Join us on Wednesday, November 12...
Read More
Watch now: Dr. Gregory Gordon, the SRF's Chief Medical Officer, shares insights on scleroderma research and advocacy in new rare disease podcast 🎧 Check out the newest episode of Keep...
Read More
