Managing Care Costs While Living with Scleroderma

Provides financial assistance for eligible systemic sclerosis patients prescribed FDA-approved treatments like Actemra, Nintedanib, or Ofev, covering costs such as prescription copays, insurance premiums, therapy administration, and travel to treatment.

Provides grants to individuals diagnosed with scleroderma who live in Texas for expenses related to burdens of disease, but not for drugs or medical bills.

Offers financial respite assistance for unpaid caregivers of individuals with a rare disease diagnosis, including scleroderma, helping cover the cost of hiring a short-term caregiver so they can take a break from caregiving duties.

Provides grants to individuals with rare and chronic disorders, including scleroderma, for medical equipment, mobility devices, and therapy items not fully covered by insurance, such as oxygen concentrators, wheelchairs, service dogs, and physical therapy sessions.

Provides financial assistance to help patients afford copays, health insurance premiums, travel costs, and other medical expenses for pulmonary hypertension, pulmonary fibrosis, and ILD.

Maintains searchable directories, organized by diagnosis (including scleroderma), state, and program name, of assistance programs covering costs like medications, co-pays, medical supplies, and transportation to medical care.

Gives grants to underinsured patients to help cover copays, premiums, deductibles, and other out-of-pocket expenses for essential treatments and medications. Grant funds cycle throughout the year, so check their website for the most current fund availability.

Provides charitable grants to help cover out-of-pocket healthcare costs, including medication co-pays, coinsurance, deductibles, and insurance premiums, for serious and chronic conditions, including pulmonary fibrosis and pulmonary hypertension.

Helps cover treatment-related costs for people with various conditions, including pulmonary arterial hypertension through co-pay assistance, travel support, insurance premium help, and diagnostic testing assistance, with Care Navigators guiding patients through each program.