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Industry Partnerships

Partnerships start with a shared goal of enhancing the quality of life for people with scleroderma.

While we continue the search for a cure, we are committed to ensuring that people living with scleroderma have the resources they need to navigate their journey. Education and awareness initiatives empower patients with knowledge, connect them to care, and strengthen their ability to advocate for themselves.

Our industry partners help sustain these vital programs. Your collaboration ensures that as we advance toward a cure, every person affected by scleroderma has access to the most up-to-date information they need.

We Have Many Partnership Opportunities

Support Education & Disease Awareness

The SRF reaches the scleroderma community through different digital channels, including our website, social media, e-newsletters, and awareness campaigns.

  • SRF Website
    • 35K+ views annually
    • Covers symptoms, diagnosis, treatments, scleroderma centers, video library, and webinars
  • Social Media: Facebook, Instagram, LinkedIn, X, Threads, YouTube, TikTok
    • Awareness messaging: FAQs, videos, patient stories, research updates
  • Monthly e-Newsletters
    • 9K+ subscribers
    • 43%+ average open rate
  • Disease Awareness Campaigns
    • Scleroderma, ILD, PAH, PF, Raynaud’s, Rare Diseases
  • Webinars and Broadcasts
    • Educational content for both patient and scientific audiences
See our Education and Awareness Campaigns

Support Clinical Trial Education

Help patients make informed decisions about clinical trials. Sponsoring clinical trial education allows the SRF to increase the understanding and participation in clinical trials through the following tools and resources:

  • Trial Finder Tool (Carebox): Matches patients to clinical trials, with navigator assistance
  • Clinical Trial FAQs: Definitions, process, patient role, addressing common misconceptions
  • Educational Resources: Webinars, videos and patient guides
  • Coming Soon: Patient journey stories, infographics, and more
See our Clinical Trial Education & Resources

Support the SRF Scleroderma Patient Forum

Our Scleroderma Patient Forum is a free virtual education event connecting patients and caregivers with leading experts.

  • Educational sessions: 6 to 9 presentations by leading scleroderma clinicians and investigators
  • Interactive experience: Live Q&A, interactive activities, surveys, polls, and patient resources
  • Virtual Sponsor Booths: A customizable, dedicated webpage where you can showcase clinical trials, patient resources, and advocacy
  • Global Reach
    • 350+ live attendees
    • 840+ registered participants, from 42 countries
    • 4,200+ YouTube views post-event
  • Completely FREE registration for all attendees
Learn More About the SRF Scleroderma Patient Forum

Sponsor Our Signature Fundraiser: Cool Comedy • Hot Cuisine

The SRF’s signature fundraising event brings together world-class performers, influential guests, and extensive media exposure to elevate scleroderma awareness and raise funds for research.

  • High-profile fundraising event hosted by Bob Saget for 30 years, now led by his family and friends
  • National media coverage raises unparalleled awareness globally (ABC News, E!, LA Times, USA Today, and more)
  • Celebrity Performances: Recent performers include Bill Burr, Dave Chapelle, Michael Che, Counting Crows, Nikki Glaser, John Mayer, Howie Mandel, Kevin Nealon, Jeff Ross, and more…
See More About Cool Comedy • Hot Cuisine

Support the CONQUER Registry

Launched by the SRF in 2018, CONQUER (COllaborative National QUality and Efficacy Registry) is a multi-center, longitudinal patient registry and bio-sample repository enabling sophisticated studies ranging from genetics to biomarkers—working toward more personalized, effective therapies for every patient. It has become the gold-standard scleroderma registry in the U.S., is now being used to support emerging clinical trials, and is the cornerstone of our growing understanding of disease pathology and clinical experience.

With more than 1,400 patients enrolled and 3,000+ samples collected, CONQUER is now being used to support emerging clinical trials, with leading pharmaceutical companies using its dataset to advance drug development. CONQUER is transforming data into better care and better treatments.

CONQUER at a Glance:

  • 1,400+ patients enrolled
  • 3,000+ samples collected
  • 20 institutions participating
Learn More About the CONQUER Registry

Educate Industry Audiences About Scleroderma

The Scleroderma Research Foundation offers an SSc educational deck, created exclusively for non-healthcare specialists (e.g., industry) audiences. It is modular and designed to enhance understanding of systemic sclerosis (SSc), with focuses on pathogenesis, evaluations, treatments, and outcomes.

Educational Deliverables:

  • Increase understanding of SSc pathogenesis, including a comprehensive overview of the vascular–fibrosis axis, inflammation, and their roles in disease progression
  • Explore the importance of early identification of SSc through current and future diagnostic criteria, clinical tools, and the role of biomarkers in early disease identification and differentiation
  • Evaluate the role of biomarkers as a guide to personalized treatment decisions and disease progression
  • Examine the current view on patient-reported outcomes, clinical trial endpoints, and unmet needs in this space

If you’re interested in the educational deck, reach out to: donations@sclerodermaresearch.org.

We Strive to Create Meaningful Collaborations

Our partnerships are guided by the following principles:

  • We collaborate with organizations that share our commitment to improving the lives of those affected by scleroderma and serve the best interests of patients, families, and caregivers.
  • We maintain open and transparent relationships with industry partners to uphold the trust of the scleroderma community and the public.
  • We support partnerships designed to create mutual value—advancing our mission while helping you achieve therapeutic goals.
  • We value partnerships that support meaningful impact, not transactional exchange.

Benefits of Working Together

Here are just a few ways that we recognize your investment in the SRF and support your goals:

  • Brand Visibility: Logo recognition on our website, annual report, and e-newsletters
  • Social Media Engagement: Opportunities to collaborate on topical posts or PSAs
  • Direct Community Connections: Connect with our patient volunteers who agree to serve as subject matter experts
  • Tailored Recognition: Digital and physical recognition customized for each sponsorship opportunity
  • Additional Bespoke Opportunities: Reach out to discuss other options that fit your needs

Interested in partnering with the SRF?

Contact donations@sclerodermaresearch.org today.

Please note that the Scleroderma Research Foundation does not sell ad space.