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The Scleroderma Research Foundation: What We Do

Advancing Research. Empowering Community. Accelerating Progress.

The Scleroderma Research Foundation (SRF) is dedicated to improving the lives of people living with scleroderma through research, education, and awareness. By bringing together scientists, clinicians, people living with this disease, and those who care for them, the SRF works to accelerate scientific discovery and advance treatments, because no one should have to live with scleroderma.

Since 1987, the organization has helped expand the field of scleroderma research and build collaborative programs focused on understanding the disease and advancing progress toward a cure.

Driving Scientific Discovery

As the nation’s largest nonprofit investor in scleroderma research, The SRF funds innovative projects and supports collaborative scientific initiatives designed to improve understanding of scleroderma and accelerate treatment development.

Basic and Translational Research Grants

$2-3 million dollars invested annually in high-impact, early-stage science conducted by top investigators at leading institutions.

Annual Science Workshop

A collaborative annual meeting where innovative research thrives, guided by the SRF Scientific Advisory Board—whose members are some of the world’s most honored and distinguished scientists.

CONQUER Patient Registry

A first of its kind nationwide, longitudinal scleroderma patient registry in the U.S., already helping to transform the understanding of this disease and enabling more personalized treatments for patients.

CONQUEST Clinical Trial

A groundbreaking global clinical trial platform launched by the SRF, enabling pharmaceutical partners to accelerate the development of new therapies for scleroderma patients.

Providing Relevant and Trusted Resources for the Scleroderma Community

The SRF Education and Awareness Programs help the world SEE, SAY, and KNOW scleroderma.

Expanding Conversations

We share stories on social media and in our emails that capture every dimension of scleroderma, whether research news or personal journeys, along with actively running disease awareness campaigns.

Educational Resources through the SRF Website

We build tools to give you the practical guidance and the deeper understanding you need to navigate scleroderma and its complications with confidence.

Connecting Community and Experts

At free webinars and events like the SRF Scleroderma Patient Forum, leading scleroderma researchers and clinicians bring their expertise and answer questions. Videos are available afterward in our on-demand video library at no cost.

Cure Crew

United by a shared belief that research is the path to a cure, Cure Crew members carry the SRF mission into their own communities through fundraisers and campaigns that raise both dollars and awareness.