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Our Story

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Learn about the first nationwide longitudinal scleroderma patient registry in the United States.


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Our research is led by our world-class Scientific Advisory Board

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The first nationwide longitudinal scleroderma patient registry in the United States.

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Our singular focus is finding a cure for scleroderma by finding, funding, and facilitating the most promising research. We recruit the scientific and clinical elite to research the causes, discover new treatments, and ultimately eradicate this disease. Research is at the center of all we do to find a cure.

What we do…

Find a cure for Scleroderma

The SRF is the United States’ leading nonprofit investor in scleroderma research and is laser-focused on finding a cure for this rare and often deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating research and collaboration among the world’s top scientists and medical institutions.

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The CONQUER Registry

The CONQUER Registry is the first nationwide longitudinal registry for scleroderma patients in the United States.  Led by the SRF and a group of clinicians from twelve major academic centers, this potentially transformative endeavor was launched in 2018.

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Cool Comedy • Hot Cuisine

Since 1987, SRF’s Cool Comedy • Hot Cuisine has been fortunate to have had some of the world’s finest performing artists generously donate their time and talents to help raise millions of dollars for scleroderma research and increase awareness about this chronic, debilitating and sometimes deadly autoimmune disease affecting thousands of people worldwide.

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Advocate for the Patient Community

The SRF is dedicated to supporting patients and their caregivers as they learn about how to best manage the challenges of scleroderma.  Through supporting Scleroderma Patient Days at a variety of Scleroderma Centers, the SRF webinar series featuring the field’s leading clinicians and researchers and its other publications, the SRF works to educate patients and others about the disease.

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Cool Comedy – Hot Cuisine Events Hosted

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Raised for Scleroderma Research

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Years of Service

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