Our 2020 Annual Report:
Read about the impact of your support.

 
 

A gift to help you secure your own future

 
 

The 23 and Me logoSystemic Sclerosis
Research Study

 
 

People living with scleroderma can help us find a cure.

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Participate in Research

You can help advance research by participating in studies.

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Meet the
Scientific Advisory Board

All of SRF’s research is led by our world-class Scientific Advisory Board.

Meet the Board

Get Involved

Join the Cure Crew and help make a difference.

Join Now

Our Mission

The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

Learn More About Our Story

What We Do

The Scleroderma Research Foundation is the United States’ leading nonprofit investor in scleroderma research and is laser-focused on finding a cure for this rare and deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions. We strive to increase awareness and knowledge of scleroderma among those living with scleroderma, the medical community, and the general public. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with scleroderma, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research.

Learn More About Us

Living with Scleroderma

Our ultimate goal is to find a cure for scleroderma. Until that happens we will raise awareness and provide education for people and their loved ones who are living with this disease.

About Scleroderma

Scleroderma is a complicated disease that often goes unrecognized, misdiagnosed, and untreated.

Learn More About Scleroderma

Participate in Research

Research is the best hope for finding a cure. You can help by participating in research studies.

Learn How You Can Participate

Join the Cure Crew

Help us do more to find a cure by raising funds and awareness.

Join Cure Crew

Kheesa’s Story

Kheesa’s symptoms started in 2005, but she wasn’t diagnosed with scleroderma for two years—until after the birth of her first child.

Read more about her motivation for fighting scleroderma and why research is important to her.

Read Kheesa’s Story

Scleroderma Statistics

4 out of 5
Patients are women

30–50
Average age of onset

80%
of SRF’s annual budget devoted to research

Our Research

All of the SRF’s funded research is focused on finding better treatments and ultimately a cure for scleroderma. Dive deeper into the details of our research efforts.

Our Research Program

The SRF’s research program actively seeks out and recruits clinical and scientific experts to join the scleroderma research community.

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Scientific Workshop

Our annual Scientific Workshop brings together our Scientific Advisors, funded researchers, applicants, and outside industry partners for intensive evaluation, discussion, brainstorming, and collaboration.

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Current Funded Projects

Our research projects are on the leading edge of scleroderma research.

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OUR SIGNATURE EVENT

Cool Comedy
Hot Cuisine

Our celebrated comedy and food-fueled fundraising event has raised millions toward scleroderma research over its 30-plus-year history.

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SUPPORT US

Help Advance Our Research

The Scleroderma Research Foundation funds research aimed at understanding the pathogenesis of scleroderma and promoting the design, development, and pilot-testing of hypothesis-driven, innovative, therapeutic approaches.

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