Learn about our unique research program.


Our Story

Learn about how the SRF was founded.



Learn about the first nationwide longitudinal scleroderma patient registry in the United States.


Participate in Research

Learn how you can be involved.


Cure Crew: Advocates for a Cure

Join Cure Crew and make a difference for the thousands of people living with scleroderma.

Read more


The first nationwide longitudinal scleroderma patient registry in the United States.

Read more

Join Our Mailing List

Receive regular email updates from the Scleroderma Research Foundation and help us find a cure.

Sign up now

The Scleroderma Research Foundation (SRF) is a 501(c)(3) nonprofit organization dedicated to seeking out and funding the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

What we do…

Find a cure for Scleroderma

The SRF is the United States’ leading nonprofit investor in scleroderma research and is laser-focused on finding a cure for this rare and often deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating research and collaboration among the world’s top scientists and medical institutions.

Learn more

The CONQUER Registry

The CONQUER Registry is the first nationwide longitudinal registry for scleroderma patients in the United States.  Led by the SRF and a group of clinicians from twelve major academic centers, this potentially transformative endeavor was launched in 2018.

Learn more

Cool Comedy – Hot Cuisine

Through events like our famous Cool Comedy – Hot Cuisine galas, SRF engages the broadest possible communities to raise awareness for scleroderma. Cool Comedy – Hot Cuisine events have raised millions of dollars for scleroderma research.  Board member Bob Saget hosts the events and award-winning chefs Susan Feniger, who is also a board member, and Mary Sue Milliken prepare the cuisine.

Learn More

Advocate for the Patient Community

The SRF is dedicated to supporting patients and their caregivers as they learn about how to best manage the challenges of scleroderma.  Through supporting Scleroderma Patient Days at a variety of Scleroderma Centers, the SRF webinar series featuring the field’s leading clinicians and researchers and its other publications, the SRF works to educate patients and others about the disease.

Learn more


Cool Comedy – Hot Cuisine Events Hosted

Learn more


Raised for Scleroderma Research

Learn more


Years of Service

Learn more