What we do…
Find a cure for Scleroderma
The SRF is the United States’ leading nonprofit investor in scleroderma research and is laser-focused on finding a cure for this rare and often deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating research and collaboration among the world’s top scientists and medical institutions.
The CONQUER Registry
The CONQUER Registry is the first nationwide longitudinal registry for scleroderma patients in the United States. Led by the SRF and a group of clinicians from twelve major academic centers, this potentially transformative endeavor was launched in 2018.
Cool Comedy – Hot Cuisine
Through events like our famous Cool Comedy – Hot Cuisine galas, SRF engages the broadest possible communities to raise awareness for scleroderma. Cool Comedy – Hot Cuisine events have raised millions of dollars for scleroderma research. Board member Bob Saget hosts the events and award-winning chefs Susan Feniger, who is also a board member, and Mary Sue Milliken prepare the cuisine.
Advocate for the Patient Community
The SRF is dedicated to supporting patients and their caregivers as they learn about how to best manage the challenges of scleroderma. Through supporting Scleroderma Patient Days at a variety of Scleroderma Centers, the SRF webinar series featuring the field’s leading clinicians and researchers and its other publications, the SRF works to educate patients and others about the disease.
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