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Join The Cure Crew

Cure Crew Volunteers Make a Difference for the Scleroderma Community.

The Scleroderma Research Foundation Cure Crew is a grassroots volunteer program that raises awareness about scleroderma and the funds to support the SRF Research Program. Cure Crew members around the world are united by a shared belief in the power of research to help people with scleroderma live longer, fuller lives, and lead us closer to a cure.

You Can Help Drive the SRF Mission Forward

Cure Crew members collaborate with the SRF to help the world SEE, SAY, and KNOW scleroderma. They don’t wait for change; they go out and make it happen.

Getting involved is easy. Repost and share SRF social media stories, ask your company to donate, participate in SRF research, host your own fundraising event, or champion one of our disease awareness campaigns. And that’s not all.

Make a direct impact by joining this passionate advocacy community.

Join The Cure Crew

Every Day, Cure Crew Members Find New Ways to Make a Difference

The Kosmach-Schumacher family hosts an annual casino night to raise funds

Cynthia W. (dx 2021) participates in SRF-funded research (ask us about how you can participate in research too)

Linda T. (pictured left) included us in her estate plans in honor of her daughter Melissa (dx 2014, pictured right) and encourages others to do the same

We’re proud to recognize all our incredible Cure Crew members.

Thank you to each and every person involved for their dedication to ending scleroderma.

View the Members

Every Day, Cure Crew Members Find New Ways to Make a Difference

Support Us
September 24, 2026
Jane Reps #SayScleroderma to Spread Awareness
"I looked down at my fingers, and they almost looked black," remembers Jane J. (dx 2008). "I couldn't lift anything without pain in my wrists." Test after test came back with nothing, until a hand surgeon treating her for carpal tunnel decided to refer her to a rheumatologist. "Eventually, I...
Support Us
August 25, 2026
Why Anna Chose to Fundraise for Her 10-Year Milestone
"I really felt like the 10 year mark was a celebration of how far I have come and wanted to do something to celebrate that," says Anna K. (dx. 2016). "I know I would not have made it to 10 years without the role of research, so raising money for...
Support Us
August 25, 2026
Meet Landry: Turning Her Scleroderma Journey Into Progress Toward a Cure
"I strongly believe that research provides hope, and fundraising is one way to turn hope into action," says Landry (dx 2015). Diagnosed with CREST syndrome, or limited scleroderma, at the age of nine, she has spent years turning her personal experience into fundraising efforts that support scleroderma research.Each June, during...
Raise Awareness
June 8, 2026
Ronna Runs for Scleroderma Awareness
"I choose to #SayScleroderma because the initial isolation and despair I felt upon diagnosis is something I want others to avoid," Ronna B. (dx 2022) says. This Scleroderma Awareness Month, join community members like Ronna to #SayScleroderma, and shine a light on this complex and often unknown disease. After signing...
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