Remembering Sharon Monsky, the SRF Founder
In loving memory of our visionary leader and dear friend
Remembering Sharon Monsky, the SRF Founder
In loving memory of our visionary leader and dear friend
An Extraordinary Life from the Start
Within her 48 years on this earth, Sharon Monsky had lived a life filled with more adventure and accomplishment than most people who have lived twice as long. As a young girl, she was a nationally ranked figure skater and one of the top Olympic contenders in the United States. In 1965, she was the youngest female figure skater to have ever achieved the Senior Ladies’ Gold Medal Compulsory Skating Award.
Sharon met her best friend and future husband, Mark Scher, at Pitzer College, where she later received her BA in Economics, and graduated at the top of her class. As a new graduate, she moved to San Francisco where she worked on the Pacific Stock Exchange for First Chicago and ran the most active options trading desk at the exchange—while standing on a box to compensate for her 5-foot-1-inch stature as she barked out orders.
Turning a Diagnosis Into a Mission
By the early 80’s, she had been happily married for five years, was embarking on a career as a management consultant at the prestigious consulting firm, McKinsey and Co., Inc, and was considering starting a family. But in 1981, she began experiencing persistent exhaustion. Doctors initially dismissed her experiences, and it took more than a year and a half before she was properly diagnosed with diffuse systemic scleroderma in 1982. She was told she only had two years to live.
Sharon was shocked to learn that many professionals in the medical field had never even heard of her illness. Frustrated by the lack of awareness and scientific research, she put her business skills to work by founding the Scleroderma Research Foundation in 1987. She educated herself relentlessly, poring over medical research, and channeled her business training into fighting back.
A Legacy That Continues to Change Lives
Defying her original prognosis by two decades, Monsky continued lobbying in Washington for funding and recognition. Under her leadership, the SRF raised $14 million and helped establish two research centers, including the San Francisco Bay Area Scleroderma Research Center at UCSF.
She valiantly battled scleroderma, and with her gifts of charm, intelligence, perseverance, and incredible courage, dedicated her life to making a difference. That dedication is the legacy that has already led to remarkable advancements in treatment options, and will one day, end this disease.
Sharon’s Vision Lives On
When Sharon passed away from complications of scleroderma in 2002, the SRF continued her battle with a new fervor, pressing forward to fund and facilitate the most promising, highest quality research. Though she is no longer with us, her vision lives on through the Scleroderma Research Foundation today.
Why Sharon Monsky Founded the SRF
Discover the vision that inspired Sharon Monsky to found the SRF and why research remains at the heart of her enduring legacy.