Living with Scleroderma
Participate in Scleroderma Research
Scleroderma is a very complicated disease that progresses and changes over time and varies greatly from person to person. You can help advance research by participating in studies. The more details we can understand about how scleroderma affects people in different ways, the closer we can come to finding the root cause.
GRASP stands for Genome Research in African-American Scleroderma Patients. Participation can help tailor treatments for African Americans and ultimately will have an impact for patients of other racial backgrounds.
People living with scleroderma can participate in this Systemic Sclerosis Research Study by 23andMe. It could change our understanding of this disease and bring us closer to future treatment discoveries.
CONQUER is a registry that collects data about scleroderma patients to track and analyze the health status, disease complications, treatments, and outcomes of numerous patients over many years.
In this section, you can explore information on what scleroderma is, how it is diagnosed, and how it can be treated. Learn about associated conditions like Raynaud’s phenomenon, pulmonary arterial hypertension (PAH), skin ulcers, or joint stiffness.
I’ve Been Diagnosed, What Do I Do?
There is a lot to understand about this complicated disease. Here is a place to get started.
Complications and Treatments
There are various complications and conditions associated with scleroderma.
MAKE A DIFFERENCE
Join the Cure Crew!
The Cure Crew is a grassroots volunteer program with the goal of raising funds and awareness for scleroderma research. You can make a difference to the thousands of people living with scleroderma.