About our Scleroderma Research
The SRF’s research leadership actively seeks and recruits experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as experts in leading-edge technologies, to join the scleroderma research community. The SRF funds a diverse portfolio of projects focused on moving scleroderma research forward.
CLINICAL TRIAL PARTICIPATION
Join the quest to advance systemic sclerosis research through CONQUEST.
Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.
Participate in Scleroderma Research
Scleroderma is a very complicated disease that progresses and changes over time and varies greatly from person to person. As a scleroderma patient, you can help advance research by participating in studies. The more details we can understand about how scleroderma affects scleroderma patients in different ways, the closer we can come to finding the root cause.
GRASP Project
GRASP stands for Genome Research in African-American scleroderma patients. Participation can help tailor treatments for African American scleroderma patients and ultimately will have an impact for scleroderma patients of other racial backgrounds.
CONQUER Registry
CONQUER is a registry that collects data about scleroderma patients to track and analyze the health status, disease complications, treatments, and outcomes of numerous patients over many years.
Clinical Trials
Clinical trials are a meaningful way for people living with scleroderma to get involved with scleroderma research and help find a cure. Search to find trials that are relevant to you as a scleroderma patient.
LIVING WITH SCLERODERMA
Watch the 2024 SRF Patient Forum
“Collaborating For a Cure,” an online patient forum for people living with scleroderma and those who care about them, is now available to watch on YouTube.
Scleroderma Resources
In this section, you can explore information on what scleroderma is, how it is diagnosed, and how it can be treated. Learn about associated conditions like Raynaud’s phenomenon, pulmonary arterial hypertension (PAH), skin ulcers, or joint stiffness.
I’ve Been Diagnosed, What Do I Do?
There is a lot to understand about this complicated disease. Here is a place to get started.
Complications and Treatments
There are various complications and conditions associated with scleroderma.
Treatment Centers
Patients who are diagnosed with scleroderma are encouraged to receive care at a specialized Treatment Center.
Webinar Series
Scleroderma Research Foundation collaborates and co-hosts free online webinars providing scleroderma health, wellbeing, and COVID-19 information.
MAKE A DIFFERENCE
Join the Cure Crew!
The Cure Crew is a grassroots volunteer program with the goal of raising funds and awareness for scleroderma research. You can make a difference to the thousands of people living with scleroderma.
Stories from People with Scleroderma
Liz
After more than 20 years managing this disease, Liz has a lot of perspective on living with scleroderma.
Ron Shares His Journey with Scleroderma
“It felt like I was hit by a truck,” recalls Ron S. (dx 2015) about his first scleroderma symptoms. In this video, he opens up about his journey with diagnosis and how he’s managing life with the condition.
Our Corporate Partners
Thank you for standing with us to find a cure.