Scleroderma Support Groups

Living with scleroderma can feel overwhelming, but you don’t have to navigate it alone. While the Scleroderma Research Foundation does not offer support groups, we partner with many organizations that do.

Support groups can connect you with other people who understand the challenges of living with scleroderma. They offer a space to share experiences, ask questions, learn from others, and find encouragement throughout your journey.

Find a Scleroderma Support Group

United States

United Kingdom

Scleroderma and Raynaud’s UK

Canada

Watch the 2025 SRF Scleroderma Patient Forum

The Scleroderma Patient Forum is an annual online, half-day forum with new information about scleroderma and research that anyone can attend for FREE. Learn about advances in treatments, disease management, clinical trials, and more.

The forum features educational sessions on scleroderma symptom management, new developments in scleroderma research, and your role in finding a cure for scleroderma.

What is CONQUER? Dr. Shervin Assassi Explains

Discover how the CONQUER Registry is accelerating scleroderma research by collecting valuable long-term patient data and biological samples.

Scleroderma Research in Action — Understanding Clinical Trials (2025)

Demystify clinical trials and learn how new therapies, innovative trial designs, and industry decisions are shaping scleroderma research.

Scleroderma Lifehacks (2025)

Get real-world tips from people living with scleroderma for navigating symptoms, daily routines, and the practical challenges of the disease.