Scleroderma Patient Forum

World-Class Expertise, Wherever You Are

The SRF Scleroderma Patient Forum is a yearly, half-day online forum with the latest information about scleroderma and research—free and open to anyone. Since launching in 2022, the Forum has grown into a truly global event, drawing attendees from more than 40 countries.

The Forum features:

Educational sessions on scleroderma symptom management, new developments in scleroderma research, and more
Presented by leaders in the field of scleroderma research and medicine with live Q&As following each presentation, giving you the chance to ask hard questions and get direct answers
Practical takeaways you can act on, from treatment updates to your role in finding a cure

Watch Highlights from the 2026 Scleroderma Patient Forum Sessions

New Horizons in the Treatment of Systemic Sclerosis (2026)

Look ahead at emerging scleroderma treatments, including promising T-cell therapies and other advances shaping the future of care.

Scleroderma 201: Beyond the Basics (2026)

Go beyond the basics of scleroderma and learn how long-term care, monitoring, and treatment strategies can evolve over time.

Scleroderma 101: Understanding Your Diagnosis (2026)

Newly diagnosed with scleroderma? Learn what your diagnosis means, which tests to expect, and what to ask your care team.

Explore the entire 2026 Patient Forum Video Library

Scleroderma Patient Forum Welcome (2026)

Join Luke Evnin and Regina Hall as they welcome the scleroderma community to the 2026 SRF Patient Forum.

Partnering with Teens for Better Systemic Sclerosis Care (2026)

Learn practical ways families and care teams can help teens with juvenile scleroderma stay engaged in treatment and build self-advocacy skills.

Genetics and Scleroderma (2026)

Is scleroderma genetic? Hear Dr. Lorinda Chung explain what current research tells us about genetics and the disease.

Browse Past Scleroderma Research Foundation Scleroderma Patient Forums

Filter Videos

Scleroderma Patient Forum Welcome (2026)

Join Luke Evnin and Regina Hall as they welcome the scleroderma community to the 2026 SRF Patient Forum.

Partnering with Teens for Better Systemic Sclerosis Care (2026)

Learn practical ways families and care teams can help teens with juvenile scleroderma stay engaged in treatment and build self-advocacy skills.

Genetics and Scleroderma (2026)

Is scleroderma genetic? Hear Dr. Lorinda Chung explain what current research tells us about genetics and the disease.

The SRF Scleroderma Patient Forum, Scleroderma Awareness Month, and You

At the SRF, our singular focus on understanding scleroderma means we have access to the most up-to-date, relevant information on scleroderma complications, treatments, and research—straight from the leading researchers and clinicians driving this work forward. We believe everyone should have access to this knowledge, wherever they are.

That’s why we created the SRF Scleroderma Patient Forum as part of our efforts for Scleroderma Awareness Month each June: to arm you with the facts you need and the knowledge you can act on, all while the search for a cure continues.

Spread the word by sharing what you’ve learned—or your own story—using #SayScleroderma on social media during Scleroderma Awareness Month and beyond.

Raise Awareness