Don't miss this month's edition of eNews! Highlights from this month include the following: Registration is now open for Cool Comedy • Hot Cuisine Inspired by your response, we've extended...
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During Scleroderma Awareness Month, Cure Crew members around the country spread scleroderma awareness and raised funds for a cure in creative ways. Sarah and her business partners at Toni remembered...
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You’re invited to Cool Comedy • Hot Cuisine 2021! The SRF’s annual signature event is going virtual again following the success of our first-ever YouTube broadcast last year. And, it’ll...
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Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. Diagnosed...
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Do you want to learn more about how to manage your nutrition while living with scleroderma? Watch this SRF-produced webinar featuring Dr. Elizabeth Volkmann (Director, UCLA Scleroderma Program). In this...
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“I love this picture of us,” says Sharon Dobie, looking at a photo of her and her son Matt out on the water on a beautiful day. A man with…
In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
In this fourth story of Scleroderma Awareness Month, Jamie shares her passion for spreading the word about scleroderma. “I do not want future generations to have this bombshell diagnosis dropped…
For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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