Doing good comes in many different forms, and David Hinman’s story represents one such way. David's mother, Kathryn Daub Hinman, was diagnosed with scleroderma in the late 1970s. He recalls...
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This holiday season, we're reflecting with gratitude on the many ways we’ve been able to accelerate the pace of scleroderma research. This is all because of people like YOU. Thanks...
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At the American College of Rheumatology (ACR) meeting, SRF-funded investigator Dr. Kathryn Torok presented on the use of Autologous Stem Cell Transplantation (ASCT) for Treatment-Resistant Juvenile-Onset Systemic Sclerosis. The results...
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The American College of Rheumatology meeting is in progress! Meet Dr. Elana Bernstein, an Assistant Professor at Columbia and Program Director of the CUMC/NYP Scleroderma Program, who studies lung disease in systemic...
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The SRF's Scientific Advisory Board member, Daniel Kastner, MD, PhD, shares his approach to deepening the understanding of autoinflammatory diseases in a story published in the journal, "Science". "Autoinflammatory diseases...
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“I learned the word scleroderma at the age of 18 when a rheumatologist explained why my hands were puffy and itchy,” Patty says. “I saw so many doctors during the...
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Dionna was seven years old when she lost her mother, Donna, to scleroderma. She says, “Scleroderma is a beast, the beast that took my mom away back in 2001.” That...
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Living with scleroderma hasn’t slowed Emily down. Two years after her diagnosis in 2016, she ran the Chicago Marathon to raise funds and awareness for research. Today, she says she...
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Rae is a medical researcher, a self-described nurturer and dreamer–and someone who lives with scleroderma. In our conversation with her, Rae talks about her journey to being diagnosed, how it...
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Scleroderma advocacy began with Juliana’s diagnosis. “The minute I found out about my rare condition, I started advocating for my rights,” she says, “and I then founded 10 regional groups,...
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