As we approach the mid-year mark, I wanted to share a few updates on the progress of our 2025 initiatives. From day one, the Scleroderma Research Foundation’s commitment to accelerating...
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This Mother's Day, let's celebrate all the strength and love of the moms in the scleroderma community—like Madison (dx 2024), a mother of five who is living with scleroderma. “Scleroderma...
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Whether you’re newly diagnosed or wanting to explore new treatments, SRF Carebox Connect provides the resources you need to find trials that could be the right fit for you. SRF...
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Mark your calendars: the SRF Patient Forum is coming soon! Plus—read about the CONQUEST team's visit to Argentina. Read Now
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It’s #NationalVolunteerWeek, and we’re celebrating the unstoppable dedication of the SRF Cure Crew! 💙 This passionate group of volunteers—made up of patients, loved ones, and allies—is critical to the SRF's...
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“I think one year in my early 20’s I went to the ER a total of 33 times because I wasn’t receiving help and didn’t know where to turn to,"...
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Meet Anoushka Donnelley, SRF’s New Director of Philanthropy! 🎉 Please join us in welcoming the newest member of the SRF team, Anoushka Donnelley! With more than 14 years of experience…
Anna G. (dx 2019) was just seven years old when she began displaying subtle but concerning symptoms. "The earliest signs that something wrong was when we noticed that her left...
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Got a tip you think could help others living with scleroderma? 💡 Whether it's a way to manage joint pain, a strategy for dealing with calcinosis, or just a simple...
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Traveling with scleroderma can present unique challenges—especially when oxygen is part of the equation. "I’ve been traveling with oxygen for almost seven years, mostly for medical appointments," Dee B. (dx...
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