Dionna was seven years old when she lost her mother, Donna, to scleroderma. She says, “Scleroderma is a beast, the beast that took my mom away back in 2001.” That...
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Living with scleroderma hasn’t slowed Emily down. Two years after her diagnosis in 2016, she ran the Chicago Marathon to raise funds and awareness for research. Today, she says she...
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Rae is a medical researcher, a self-described nurturer and dreamer–and someone who lives with scleroderma. In our conversation with her, Rae talks about her journey to being diagnosed, how it...
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Scleroderma advocacy began with Juliana’s diagnosis. “The minute I found out about my rare condition, I started advocating for my rights,” she says, “and I then founded 10 regional groups,...
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We're pleased to announce a new SRF-funded research study: Establishing a Spatially–integrated Transcriptomic, Epigenomic, and Histologic Signature of Fibrosis in Systemic Sclerosis, led by Michael Longaker, MD, and Howard Chang,...
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Participating in research is crucial to finding a cure for scleroderma. SRF Cure Crew member Melissa talks about just this in a new 23andMe blog post. She participated in 23andMe's...
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For #ThrowbackThursday, we’re remembering how Cool Comedy • Hot Cuisine spreads laughter and scleroderma awareness every year. And, we’re excited to host it virtually once again as a live broadcast on Sunday, October 17th! SRF...
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Supporters like you are at the core of everything we do at the Scleroderma Research Foundation. You make it possible for us to drive scientific research forward, helping to secure...
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Don't miss this month's edition of eNews! Highlights from this month include the following: Registration is now open for Cool Comedy • Hot Cuisine Inspired by your response, we've extended...
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During Scleroderma Awareness Month, Cure Crew members around the country spread scleroderma awareness and raised funds for a cure in creative ways. Sarah and her business partners at Toni remembered...
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