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Jan 12 2022

Scleroderma Research Foundation announces $1.5M matching gift in honor of Bob Saget

By jason Wertheimer News and Updates
Saget’s commitment to building awareness of the disease will continue through support of family, friends, and fans San Francisco, CA (January 13, 2022) – The Scleroderma Research Foundation (SRF)—the country’s...
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Aug 03 2022

Cool Comedy Hot Cuisine, a Tribute to Bob Saget, Benefitting the Scleroderma Research Foundation

By Hannah Young Cool Comedy • Hot Cuisine

San Francisco, CA (August 3, 2022) – The Scleroderma Research Foundation (SRF)—the country’s first and leading nonprofit investor in medical research into scleroderma—announced today that Cool Comedy • Hot Cuisine…

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Jun 28 2022

2022 Research Challenge: Katy’s Story

By Hannah Young Living with Scleroderma, Research
In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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Jun 23 2022
Chip

#SayScleroderma: Chip’s Story

By Hannah Young Living with Scleroderma
Our third story of Scleroderma Awareness Month starts more than 31 years ago. Chip had “what I thought was an ingrown fingernail on my right index finger.” A game of...
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Jun 17 2022
Kate and Parents

#SayScleroderma: Kate’s Story

By Hannah Young Living with Scleroderma
“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
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Jun 09 2022

How Beth Honors her Mother through Advocacy

By Hannah Young Making a Difference
Once again in June, Grove Wine Bar will join the Scleroderma Research Foundation’s campaign, #SayScleroderma, for Scleroderma Awareness Month. Over 400 employees will wear T-Shirts branded with the Grove, SRF,...
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Jun 08 2022
Bob Saget, Jeff Ross, Cool Comedy Hot Cuisine

Jeff Ross Spreads Awareness to Millions

By Hannah Young Making a Difference
A huge thank you to Jeff Ross for his dedication as a longtime supporter of the SRF and scleroderma advocate. As a close friend of SRF Board Member Bob Saget,...
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Jun 06 2022
Farah

#SayScleroderma: Farah’s Story

By Hannah Young Living with Scleroderma
For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
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May 20 2022
Bob Saget, Jodie Sweetin, Cool Comedy Hot Cuisine

Jodie Sweetin Raises Funds for a Cure

By Hannah Young Making a Difference
A big thank you to Jodie Sweetin for playing for the SRF on Name that Tune—we recently received a stunning gift of $10,000 in prize money after she won against...
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May 19 2022
Pravitt Gourh

The SRF’s 2022 Science Workshop

By Hannah Young Research
After two years of virtual meetings, the SRF's Science Workshop returned as an in-person event! This past weekend, over 50 clinicians and scientists gathered in San Francisco to discuss innovations in scleroderma...
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May 17 2022
Bob Saget, CCHC 1994

Happy Birthday to Bob Saget, on What Would Have Been His 66th Birthday

By Hannah Young News and Updates
Today would have been Bob Saget's 66th birthday. It still seems unimaginable that we would lose him so soon, and all of us at the SRF miss him more than...
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Recent Posts

  • Cool Comedy Hot Cuisine, a Tribute to Bob Saget, Benefitting the Scleroderma Research Foundation
  • 2022 Research Challenge: Katy’s Story
  • #SayScleroderma: Chip’s Story
  • #SayScleroderma: Kate’s Story
  • How Beth Honors her Mother through Advocacy

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      • GRASP Project
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      • Complications and Treatments
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