The Scleroderma Research Foundation (SRF) reflects on one year after losing longtime supporter and board member, Bob Saget, and looks ahead to continuing his legacy in 2023. For more than…
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Dear Friends, Thank you for your dedication to the mission of the Scleroderma Research Foundation (SRF) where research is at the center of everything we do. Below you’ll find an update on...
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It’s National Kidney Month, and for those living with scleroderma, approximately 15% are affected by kidney problems. As one of those affected, Falguni (dx 2020) shares how her experience with scleroderma...
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Join us in welcoming the University of California, Los Angeles to the CONQUER Registry! UCLA recently joined the CONQUER Registry—a highly collaborative consortium of some of the largest scleroderma centers…
Meet the Scleroderma Research Foundation’s newest staff member. Please join us in welcoming our new Development Database Manager, Ruben Cordoba. Ruben brings a strong analytical mindset and technical expertise to…
The Scleroderma Research Foundation's March eNews is now available to read online! We've got information on how our upcoming Science Workshop helps advance research, an introduction to our newest team...
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Casino games, friends, and family—all to find a cure. Ever since Joan Kosmach passed away from scleroderma complications in 1995, her five children, and their friends and families, have raised…
Today is Rare Disease Day. This month, you all have done so much to raise awareness of what it means to live with a rare disease, like scleroderma. Scleroderma, or systemic sclerosis,…
Your voice matters! The National Organization for Rare Disorders and the Rare Disease Diversity Coalition created a national survey for Rare Disease patients and caregivers. The survey focuses on people of color…
February is Black History Month. As we celebrate the rich culture of Black Americans, let’s raise awareness of how scleroderma affects this community. Research shows that African Americans tend to have…
In this month's edition of eNews, learn more about how you can create a will for free, what you can do to help raise awareness, and more. Read More
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