Saget’s commitment to building awareness of the disease will continue through support of family, friends, and fans San Francisco, CA (January 13, 2022) – The Scleroderma Research Foundation (SRF)—the country’s...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
San Francisco, CA (September 22, 2022) – Last night, Co-chairs John Mayer, Kelly Rizzo, Jeff Ross, and SRF Board Member, Susan Feniger presented and curated Cool Comedy • Hot Cuisine,…
We’re so grateful to SRF Board Member Regina Hall for representing us at the Cantor Fitzgerald Charity Day this year! Every year, since 9/11/2001, Cantor Fitzgerald commemorates the 658 employees…
San Francisco, CA (August 3, 2022) – The Scleroderma Research Foundation (SRF)—the country’s first and leading nonprofit investor in medical research into scleroderma—announced today that Cool Comedy • Hot Cuisine…
The SRF mourns the loss of former board member Daniel Morton, who passed away last month. He joined the board of the SRF in the early ’90s, after reading a…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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In this month's eNews, we're excited to share that you can now register for Cool Comedy • Hot Cuisine, a tribute to Bob Saget. There's also information on other community...
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If you haven't listened yet, Episode 25 of the Mogil's Mob podcast is out. It features host Ann Mogilevsky, who has scleroderma, in conversation with SRF Board Member Sharon Dobie....
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Today is #WorldSclerodermaDay, a day created to tell people what it means to have scleroderma and recognize those who live with it. Join us today as we #SayScleroderma so that…
