Looking for reliable information about interstitial lung disease (ILD) & scleroderma? Visit our newly updated webpage. 🫁 ILD is a serious complication of systemic sclerosis that can cause inflammation and...
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Join us in kicking off Raynaud’s Awareness Month on February 3 at 9AM PST/12PM EST with a free, virtual webinar followed by a live Q&A! Presented by Tracy Frech, MD,...
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After her scleroderma diagnosis, Tatiana B. (dx 2020) knew she wanted to help move research forward. A recommendation from her rheumatologist led her to enroll in CONQUER. “I feel deeply...
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In this special StoryCorps recording with Dr. Lorinda Chung at Stanford Healthcare, Falguni reflects on her early symptoms, the challenges of diagnosis, and how her care team helped her after...
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We are excited to share a recent interview with Vie Ventures Co-Founders Luke Evnin, PhD (SRF Board Chair) and Steven St. Peter, MD hosted on BiotechTV. The interview highlights: 🔹...
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Join us in kicking off Raynaud’s Awareness Month on February 3 with a special online session presented by Tracy Frech, MD, MS (Vanderbilt University). In this webinar, Dr. Frech will…
At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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“When I was first diagnosed, I was very depressed. I didn’t know what this illness would do to me,” Tameka N. (dx 2012) remembers. “Now, I just enjoy life as...
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When working on a rare disease like scleroderma, it can be difficult for scientists and drug companies to develop strong pipelines for new treatments. The Scleroderma Research Foundation (SRF) realized...
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