Jennifer was diagnosed with scleroderma in 2018—years after seeking help. “I started having Raynaud's attacks in 2013 along with other weird things like red blotches all over my face, later...
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Kick off Scleroderma Awareness Month by attending the SRF’s Collaborating For a Cure, our inaugural Virtual Patient Forum! On June 1st, we’ll be hosting our first ever half-day Virtual Patient Forum for all those…
It's National Volunteer Week and we want to say thank you to the SRF’s incredible Cure Crew, a grassroots volunteer community of scleroderma patients, friends, and families. You make a huge impact...
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When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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Today, we are deeply saddened to learn of the passing of Gilbert Gottfried. He was a good friend of late SRF Board Member Bob Saget, and so he also became…
In this month's eNews, we're sharing more about our new patient forum, "Collaborating for a Cure," along with information on new CONQUER centers (places where you can participate in research)...
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National Minority Health Month is here. April is an opportunity to raise awareness and encourage advocacy about how health disparities can affect people from racial and ethnic minority groups, including…
Today is National Doctor’s Day, and we want to offer huge thanks to every doctor in the U.S. and around the globe for their dedication and compassion in serving the…
Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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Meet Sarah Wood, the Clinical/Translational Research Coordinator at Vanderbilt University Medical Center. A recently graduated master's student who researched autoimmune diseases, she's now turning her focus to ending scleroderma. She...
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