When managing scleroderma, it’s important to understand interstitial lung disease (ILD), which is a complication that can affect breathing and lung function. 1. ILD is a common complication of systemic...
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Because scleroderma often affects the digestive system, many people living with the disease experience gastrointestinal (GI) issues that can impact nutrition and overall health. The GI tract is the body...
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“Being able to be part of a study that could help treat—or even save—a person’s life is a humbling experience,” Amy G. (dx 2001) says of her decision to participate...
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From early symptoms to ongoing care, questions about living with scleroderma don’t stop after diagnosis. Your Scleroderma Questions, Answered is a Q&A column featuring responses from the SRF’s Chief Medical Officer,...
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From symptoms to treatment to day-to-day concerns, your scleroderma questions matter. "Ask a Doctor" is a new Q&A column featuring responses from the SRF’s Chief Medical Officer, Dr. Gregory Gordon,...
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CONQUEST is a platform clinical trial designed by the SRF to accelerate the development of potential new treatments for scleroderma. With 142 sites across 24 countries, CONQUEST is bringing together...
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When working on a rare disease like scleroderma, it can be difficult for scientists and drug companies to develop strong pipelines for new treatments. The Scleroderma Research Foundation (SRF) realized...
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Wondering if you could qualify to join a clinical trial for people living with scleroderma? Let’s talk about what determines your eligibility. Clinical trials can offer access to promising new...
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Join SPIN for their online event on November 22! The SRF is partnering with the Scleroderma Patient-centered Intervention Network (SPIN) and international partners for "What’s New in Scleroderma Research: An...
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In our recent communications survey, many of you asked for more support around managing diet and nutrition with scleroderma—especially for GI symptoms that can affect daily life. We heard you....
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