“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
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June is Scleroderma Awareness Month, and Barbara (@simply_beeinlove) from Thriving with Scleroderma is choosing to spread the word with our custom #SayScleroderma frame. Why does Barbara #SayScleroderma? "I #SayScleroderma because...
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June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness...
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It’s that time of year again! June marks Scleroderma Awareness Month— are you ready to spread the word? Why #SayScleroderma? Many people are unaware of what scleroderma is and the…
“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Give a big round of applause to the SRF Cure Crew—in 2023 alone, they raised more than $158,000 for research! The Cure Crew is a grassroots group of volunteers that...
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Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
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Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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