Elisabeth Shares Why We Need Rare Disease Research

Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare diseases, like scleroderma, is so critical. As both a scientist and someone directly impacted by scleroderma, she lists the top 3 questions she has that she wants research to answer.

Here at the SRF, we’re singularly-focused on supporting the most-promising research to find a cure. That means funding a diverse portfolio of projects aimed at answering questions like these. We actively recruit experts from the fields of rheumatology, immunology, genetics, and fibrosis, as well as experts in cutting-edge technologies, to join the scleroderma research community.

Scleroderma is one of more than 7,000 conditions classified as rare diseases, and we stand with the entire rare disease community to bring attention to how these diseases affect people and the need for research. Be sure to join us for Rare Disease Day on February 28 to raise awareness and drive action for the rare disease community.