How to Advocate for Yourself — Making the Most of Your Doctor’s Visits (2023)

Join Sharon Dobie, MD (SRF Board Member) as she discusses the importance of being an advocate for your own or a loved one’s healthcare and how best to do so when living with a rare disease. Panelists include Matt Prior (Scleroderma Community Member and father of a daughter living with scleroderma), Marie Rand (Associate Director, Patient Marketing – Pulmonary Hypertension PECS Patient Experience, Janssen Pharmaceuticals), and Raele Robison, PhD (Scleroderma Community Member and lives with scleroderma).

This session was originally presented in 2023, as part of the 2nd annual SRF Patient Forum, “Collaborating for a Cure.”