Partnering with Teens for Better Systemic Sclerosis Care (2026)

Treatment adherence in adolescents with juvenile scleroderma can often be difficult. In this session, Kathryn Torok, MD (UPMC Children’s Hospital of Pittsburgh), Alexandra Chop, MD (UPMC Children’s Hospital of Pittsburgh) and Colleen Main, LCSW (UPMC Children’s Hospital of Pittsburgh) explore why teens with juvenile scleroderma struggle with treatment adherence and sharing practical strategies for families and care teams — from reducing power struggles to building self-advocacy and preparing for the transition to adult care.

This session was originally presented on June 11, 2026, as part of the 5th annual SRF Scleroderma Patient Forum.