This is Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in Ukraine...
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This #RaynaudsAwarenessMonth we asked you to spread awareness, share your personal stories, or suggest life hacks for others to try, and we’ve been blown away by your responses! Today we're spotlighting just...
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Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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Research is the best hope for finding a cure. This is why in 2018, the SRF launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of...
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Long-time SRF Cure Crew members and scleroderma advocates, the Connors-McBride and Zini family, continued their seven-year tradition of producing a comedy show called "Best Medicine" to raise funds for a...
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This Raynauds Awareness Month, Dani shares her story and advocates for research. She was diagnosed with scleroderma in 2016—after noticing the classic signs of Raynaud's phenomenon. “Time has made me...
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As we share our February edition of eNews, it's been nearly a month since we lost SRF Board Member and dear friend Bob Saget. In this edition, SRF Chairman of...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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