Research is the best hope for finding a cure. This is why in 2018, the SRF launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of scleroderma patients.
So how does CONQUER work? It all starts with your participation—you make routine clinical visits on a semi-annual basis. Your clinician will collect a blood sample and clinical data at each of these visits. The biosamples will be sent to the scleroderma biorepository at the University of Texas, Houston, and the clinical data will be processed and stored in a meticulously curated database at the renowned data coordinating center at the University of Utah.
Throughout this process, all of your information is anonymized and kept secure. Once enough data is collected, researchers will utilize the data and associated samples to drive discoveries.
Visit our page to review your eligibility and find a center near you.
If you have more questions, reach out to us and we’ll help you get started! DM us, or email Gloria Blecha, Director of Community Engagement, at gloria@sclerodermaresearch.org
