Raising Scleroderma Awareness

No one should have to suffer with scleroderma, and no one suffering should also have to explain what scleroderma is and does. That’s why every conversation about scleroderma matters. Lack of awareness causes delays in treatment and diagnosis, and it must end.

Together, We Can Raise Awareness

All year round, the SRF runs focused awareness campaigns for scleroderma and its complications to provide resources, spotlight community members, and spread the word—but awareness can’t happen without you.

Join us in helping more people recognize the signs, find support, and understand how scleroderma affects those who live with the disease. Learn more about the campaigns and how you can get involved below.

#SayScleroderma for Scleroderma Awareness Month

Each June, you can join the #SayScleroderma campaign to help raise awareness, spark conversations, and bring greater visibility to the scleroderma community.

Say Scleroderma

Raynaud’s Awareness Month

Raynaud's phenomenon affects nearly everyone with scleroderma, often years before other symptoms appear. Each February, help us raise awareness of this early warning sign and its connection to scleroderma diagnosis.

Rare Disease Day

Scleroderma is one 6,000+ rare diseases that affect millions of people worldwide. Join us on Rare Disease Day each year on February 28 or 29 to help amplify the voices of the rare disease community and push for greater research and support.

ILD Day

Interstitial lung disease is a common complication of scleroderma, and early screening can make a real difference. Join us each September to help us raise awareness of ILD and the importance of catching it early.

PH Awareness Month

Pulmonary hypertension (PH) is a serious complication that can develop in people with scleroderma. Join us each November to help us spread the word about PAH symptoms, screening, and the treatments that can make a difference.

Get Your Own #SayScleroderma Swag

You can now rep the cause in style — shirts, hoodies, bags, and hats with so many fun options to choose from. Rock your favorite look while helping spread the word about scleroderma everywhere you go.

Check Out the SRF Merch Shop