In 2018, the SRF launched the CONQUER Registry (COllaborative National Quality and Efficacy Registry) – a first-of-its-kind longitudinal, nationwide patient registry and biosample repository aimed at improving care and developing...
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FDA clears IND to launch CONQUEST trial platform with initial focus on Interstitial Lung Disease Secondary to Scleroderma (SSc-ILD) SCLERODERMA RESEARCH FOUNDATION (SRF) holds the IND as trial Sponsor Sanofi...
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CONQUEST Featured in "Endpoints News" SRF Chairman of the Board Luke Evnin, PhD, recently sat down with Andrew Dunn of "Endpoints News" to announce that CONQUEST has received FDA OK...
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What makes researchers so dedicated to finding a cure? SRF-Funded investigator, Dr. Howard Chang of Stanford University, shares his perspective on making an impact through scleroderma research.
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Join us in welcoming the University of California, Los Angeles to the CONQUER Registry! UCLA recently joined the CONQUER Registry—a highly collaborative consortium of some of the largest scleroderma centers…
Your voice matters! The National Organization for Rare Disorders and the Rare Disease Diversity Coalition created a national survey for Rare Disease patients and caregivers. The survey focuses on people of color…
Dr. Michael Whitfield shares why scleroderma research is entering a promising new era. As a Scleroderma Research Foundation funded investigator, Dr. Whitfield (of the Geisel School of Medicine at Dartmouth) is part...
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Do you live with scleroderma and have digital ulcers? You’re invited to complete a survey launched the World Scleroderma Foundation ad hoc GI Committee—led by SRF-funded investigator Dr. Zsuzsanna McMahan,…
Learn how your donation helps SRF-funded researchers like Dr. Torok (University of Pittsburgh) push the envelope on cutting-edge studies like the juvenile scleroderma project—all to find a cure. Will you help...
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Last week during the American College of Rheumatology Conference in Philadelphia, the SRF hosted two meetings to convene Principal Investigators and Research Coordinators from all 17 institutions participating in the…
