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You’ve Been Diagnosed with Scleroderma. What Do You Do Now?

Building Your Scleroderma Care Team

Your primary care doctor can review your symptoms and perform initial testing for scleroderma. Once a diagnosis is made, you may be referred to a rheumatologist. From there, your ongoing care may involve a team of specialists, including:

  • General Internist, Family Medicine Doctor, or your Primary Care Provider: oversees your overall health and coordinates care
  • Rheumatologist: treats rheumatic and autoimmune diseases
  • Dermatologist: treats diseases of the skin, hair, and nails
  • Gastroenterologist: treats diseases of the digestive system
  • Orthopedist: treats bone and joint disorders
  • Pulmonologist: a lung specialist

We encourage scleroderma patients to seek care at a specialized Treatment Center, where a team of specialists works together to provide coordinated, comprehensive care every step of the way.

Find a Scleroderma Treatment Center Near You

SRF Webinars: The Fundamentals of Scleroderma

Watch presentations from leading researchers and clinicians to learn more about what scleroderma is and an overview of management strategies.

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Staying Ahead of Scleroderma-ILD: Understanding Progression and Your Treatment Options

Learn more about scleroderma-associated interstitial lung disease (SSc-ILD) is a serious complication that occurs when there is inflammation and scarring of the lung tissue, and can affect breathing.

Partnering with Teens for Better Systemic Sclerosis Care (2026)

Learn practical ways families and care teams can help teens with juvenile scleroderma stay engaged in treatment and build self-advocacy skills.

Lungs and Scleroderma (2026)

Learn how scleroderma affects the lungs, how pulmonary complications are monitored and treated, and what patients can do to support respiratory health.

Scleroderma, Your Esophagus, and Your Meds (2026)

Learn how to manage reflux and medication interactions with practical guidance on gastrointestinal care in scleroderma.

Raynaud’s and Digital Ulcers: Biology and Treatment Strategies (2026)

Learn what causes Raynaud’s and digital ulcers in systemic sclerosis, how they are diagnosed, and which treatments and research advances may help.

Scleroderma and the Lungs – A Spotlight on ILD, with Dr. Toby Maher (2025)

Learn what scleroderma patients and caregivers should know about interstitial lung disease, including screening, treatments, future therapies, and symptom management.