Let's talk about scleroderma—because understanding this disease is key to spreading awareness. It’s Scleroderma Awareness Month, which is a time to shine a light on this challenging disease and the...
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It’s Scleroderma Awareness Month–are you ready to spread the word? Why #SayScleroderma? Because everyone should know what this disease is and does. Because no one should have to live with...
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SRF Board member and award-winning actress Regina Hall joins Celebrity Wheel of Fortune tomorrow, Wednesday, May 21 at 8/7c on ABC, competing to help support scleroderma research. Regina has been...
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Thank you, Cure Crew, for an incredible 2024! 🎉 This year, the Cure Crew—a global grassroots community of dedicated volunteers—made an incredible impact for the scleroderma community. Together, this passionate...
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This past January, Carl Mayer hosted a special version of his #15dollargameshow on Instagram Live in memory of his long-time friend, Bob Saget—raising more than $3,100 for scleroderma research! Over 400 viewers…
February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Give a big round of applause to the SRF Cure Crew—in 2023 alone, they raised more than $158,000 for research! The Cure Crew is a grassroots group of volunteers that...
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Lorena was diagnosed with scleroderma in 2021, and she wants a cure found for this disease. “When I went to see my scleroderma doctor for the first time, I was…
In 2015, Mercy began to notice changes in her health. However, it wasn’t until 2017 that she received a definitive diagnosis: scleroderma. “I was progressing pretty quickly at the time,”…
"I lost a lot of me." This is what Cynthia, dx 2021, shared about living with scleroderma. It's just one of many reasons why she participates in research that accelerates...
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