Today is Rare Disease Day—a global movement dedicated to raising awareness and improving access to diagnosis, care, and treatment for people living with rare diseases. You can make a difference...
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February is here, and we’re turning up the volume for #RaynaudsAwarenessMonth and #RareDiseaseDay. 📣 There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this...
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For people living with rare diseases, recognizing early signs and symptoms is critical. In scleroderma, Raynaud’s phenomenon is often one of those first warning signs. That’s why February—Raynaud’s Awareness Month, with Rare...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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Watch now: Dr. Gregory Gordon, the SRF's Chief Medical Officer, shares insights on scleroderma research and advocacy in new rare disease podcast 🎧 Check out the newest episode of Keep...
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Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare...
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February is an important month for the scleroderma community as we raise awareness for both Raynaud’s Awareness Month and Rare Disease Day. In this article, we’ve compiled essential resources to...
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Your voice matters! The National Organization for Rare Disorders and the Rare Disease Diversity Coalition created a national survey for Rare Disease patients and caregivers. The survey focuses on people of color…
National Minority Health Month is here. April is an opportunity to raise awareness and encourage advocacy about how health disparities can affect people from racial and ethnic minority groups, including…
