I’ve Been Diagnosed with Scleroderma. What Do I Do Now?

Your primary care doctor can review your symptoms and do initial testing. Once a scleroderma diagnosis is made, you may be referred to see a rheumatologist. Ongoing scleroderma treatment might be with any of the following:

  • General Internist, Family Medicine Doctor, or your primary care provider
  • Rheumatologist: treats rheumatic and autoimmune diseases
  • Dermatologist: treats diseases of the skin, hair, and nails
  • Gastroenterologist: treats diseases of the digestive system
  • Orthopedist: treats bone and joint disorders
  • Pulmonologist: a lung specialist

We encourage scleroderma patients to receive care at a specialized Treatment Center. At these centers, different specialists work together to coordinate care.

Find a Scleroderma Treatment Center Near You
CLINICAL TRIAL PARTICIPATION

Join the quest to advance systemic sclerosis research through CONQUEST.

Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.

All About Enrolling in CONQUEST

More Resources

Complications and Treatments

There are various complications and conditions associated with scleroderma.

Learn About Treatments

Treatment Centers

Patients who are diagnosed with scleroderma are encouraged to receive care at a specialized Treatment Center.

View Treatment Centers

Webinar Series

Scleroderma Research Foundation collaborates and co-hosts free online webinars providing scleroderma health, wellbeing, and COVID-19 information.

See Available Webinars
MAKE A DIFFERENCE

Join the Cure Crew!

Cure Crew is a grassroots volunteer program with the goal of raising funds and awareness for scleroderma research. You can make a difference to the thousands of people living with scleroderma.

Learn More