Participate in Scleroderma Research
You can help advance research for a cure for scleroderma by participating in studies.
Meet the
Scientific Advisory Board
All of SRF’s research is led by our world-class Scientific Advisory Board.
Get Involved
Join the Cure Crew and help make a difference by raising awareness and getting us closer to a cure for scleroderma.
The Scleroderma Research Foundation Mission
The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.
What We Do at the SRF
The Scleroderma Research Foundation is the United States’ leading 501(c)3 nonprofit investor in scleroderma research and is laser-focused on finding a cure for scleroderma, a rare and deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.
We strive to increase awareness and knowledge of scleroderma among those living with scleroderma, the medical community, and the general public. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with scleroderma, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research.
Living with Scleroderma
Our ultimate goal is to find a cure for scleroderma. Until that happens the SRF will raise awareness and provide education for people and their loved ones who are living with scleroderma.
About Scleroderma
Scleroderma is a complicated disease that often goes unrecognized, misdiagnosed, and untreated.
Participate in Scleroderma Research
Research is the best hope for finding a cure for scleroderma. You can help by participating in research studies.
Join the Cure Crew
Help us do more to find a cure for scleroderma by raising funds and awareness.
CLINICAL TRIAL PARTICIPATION
Join the quest to advance systemic sclerosis research through CONQUEST.
Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.
Kheesa’s Story
Kheesa’s symptoms started in 2005, but she wasn’t diagnosed with scleroderma for two years—until after the birth of her first child.
Read more about her motivation for fighting scleroderma and why research is important to her.
Scleroderma Statistics
4 out of 5
Patients are women
30–50
Average age of onset
80%
of SRF’s annual budget devoted to research
SRF Research
All of the SRF’s funded research is focused on finding better treatments and ultimately a cure for scleroderma. Dive deeper into the details of our medical research efforts.
SRF Research Program
The SRF’s research program actively seeks out and recruits clinical and scientific experts to join the scleroderma research community.
Science Workshop
The SRF annual Science Workshop brings together our Scientific Advisors, funded researchers, applicants, and outside industry partners for intensive evaluation, discussion, brainstorming, and collaboration.
Current Funded Projects
SRF research projects are on the leading edge of scleroderma research.
OUR SIGNATURE EVENT
Cool Comedy
Hot Cuisine, a tribute to Bob Saget
The SRF’s signature event, Cool Comedy • Hot Cuisine, took place November 8th in NY as a tribute to Bob—raising more than $1.2 Million for scleroderma research.
SUPPORT THE SRF
Help Advance Our Scleroderma Research
The Scleroderma Research Foundation funds research aimed at understanding the pathogenesis of scleroderma and promoting the design, development, and pilot-testing of hypothesis-driven, innovative, therapeutic approaches.
