Making Progress in Leaps & Bounds

Help advance research for Greg C., dx 2017, and everyone living with scleroderma

 
 

1,000th patient enrolls in CONQUER!

A major milestone for the nation's only longitudinal scleroderma patient registry, launched by the SRF

 

Autoimmune Diseases Affect More Women than Men—New Research Sheds Light on Why

SRF-funded researcher Dr. Howard Chang and his collaborators have made a breakthrough discovery

 

Great News: $1.2 Million Raised for Research! Cool Comedy Hot Cuisine - Benefiting The Scleroderma Research Foundation

 
 

“We are in business to go out of business.”

 
 

People living with scleroderma can help us find a cure.

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Making Progress in Leaps & Bounds

Help advance research for Greg C., dx 2017, and everyone living with scleroderma

 
 

1,000th patient enrolls in CONQUER!

A major milestone for the nation's only longitudinal scleroderma patient registry, launched by the SRF

 

Autoimmune Diseases Affect More Women than Men—New Research Sheds Light on Why

SRF-funded researcher Dr. Howard Chang and his collaborators have made a breakthrough discovery

 

Great News: $1.2 Million Raised for Research! Cool Comedy Hot Cuisine - Benefiting The Scleroderma Research Foundation

 
 

“We are in business to go out of business.”

 
 

People living with scleroderma can help us find a cure.

Participate in Scleroderma Research

You can help advance research for a cure for scleroderma by participating in studies.

Learn More

Meet the
Scientific Advisory Board

All of SRF’s research is led by our world-class Scientific Advisory Board.

Meet the Board

Get Involved

Join the Cure Crew and help make a difference by raising awareness and getting us closer to a cure for scleroderma.

Join Now

The Scleroderma Research Foundation Mission

The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.

Learn More About Our Story

What We Do at the SRF

The Scleroderma Research Foundation is the United States’ leading 501(c)3 nonprofit investor in scleroderma research and is laser-focused on finding a cure for scleroderma, a rare and deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions.

We strive to increase awareness and knowledge of scleroderma among those living with scleroderma, the medical community, and the general public. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with scleroderma, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research.

Learn More About the SRF

Living with Scleroderma

Our ultimate goal is to find a cure for scleroderma. Until that happens the SRF will raise awareness and provide education for people and their loved ones who are living with scleroderma.

About Scleroderma

Scleroderma is a complicated disease that often goes unrecognized, misdiagnosed, and untreated.

Learn More About Scleroderma

Participate in Scleroderma Research

Research is the best hope for finding a cure for scleroderma. You can help by participating in research studies.

Learn How You Can Participate

Join the Cure Crew

Help us do more to find a cure for scleroderma by raising funds and awareness.

Join Cure Crew
CLINICAL TRIAL PARTICIPATION

Join the quest to advance systemic sclerosis research through CONQUEST.

Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.

All About Enrolling in CONQUEST

Kheesa’s Story

Kheesa’s symptoms started in 2005, but she wasn’t diagnosed with scleroderma for two years—until after the birth of her first child.

Read more about her motivation for fighting scleroderma and why research is important to her.

Read Kheesa’s Story

Scleroderma Statistics

4 out of 5
Patients are women

30–50
Average age of onset

80%
of SRF’s annual budget devoted to research

SRF Research

All of the SRF’s funded research is focused on finding better treatments and ultimately a cure for scleroderma. Dive deeper into the details of our medical research efforts.

SRF Research Program

The SRF’s research program actively seeks out and recruits clinical and scientific experts to join the scleroderma research community.

Learn More

Science Workshop

The SRF annual Science Workshop brings together our Scientific Advisors, funded researchers, applicants, and outside industry partners for intensive evaluation, discussion, brainstorming, and collaboration.

Learn More

Current Funded Projects

SRF research projects are on the leading edge of scleroderma research.

Learn More
OUR SIGNATURE EVENT

Cool Comedy
Hot Cuisine, a tribute to Bob Saget

The SRF’s signature event, Cool Comedy • Hot Cuisine, took place November 8th in NY as a tribute to Bob—raising more than $1.2 Million for scleroderma research.

Learn More
SUPPORT THE SRF

Help Advance Our Scleroderma Research

The Scleroderma Research Foundation funds research aimed at understanding the pathogenesis of scleroderma and promoting the design, development, and pilot-testing of hypothesis-driven, innovative, therapeutic approaches.

Learn More