A campaign launched for Scleroderma Awareness Month,
June 2021

Why #SayScleroderma?

Because not enough people know what scleroderma is or does.
Because lack of awareness causes delays in treatments and diagnoses.

This is why we launched #SayScleroderma for Scleroderma Awareness Month in June of 2021. Throughout June, we shared from community members on our social media, along with various ways you can make a difference by using your voice and influence. Though Scleroderma Awareness Month has ended, spreading awareness doesn’t need to stop. Let’s continue to #SayScleroderma, until we one day find a cure.

Meet The People

People who live with scleroderma share their experiences.

Liz

Diagnosed in 1998

“Scleroderma has changed my life for the better and the worse simultaneously.”

Read Liz's Story

Jamie

Diagnosed in 2015

“I do not want future generations to have this bombshell diagnosis dropped on them: “You have Scleroderma” and have no clue what that means for them.”

Read Jamie's Story

Sophie Anne

Diagnosed in 2019

“I am still young and I really want a cure to be found.”

Read Sophie Anne's Story

Michael

Diagnosed in 2019

“People just aren’t aware of scleroderma. That’s why I’m very willing to tell my story.”

Read Michael's Story

Ile

Diagnosed in 2019

“To me the word scleroderma means fight like hell. Any meaning, latin or otherwise, just doesn’t matter.”

Read Ile's Story

Spread Awareness

Post a video of you saying the word and what it means to you on social media, talk to someone in your life about this disease, or share one of our #SayScleroderma posts. Tag us (@srfcure on Facebook, Instagram, Twitter, and Scleroderma Research Foundation on LinkedIn) so that we can amplify your voice if possible! Or, send us an email at info@srfcure.org and let us know how you’ve made an impact.

Download Social Media Toolkit

Help Find a Cure

Take making a difference to the next level by supporting the most promising research.

Ways To Give

Join The Community

Take making a difference to the next level by supporting the most promising research.