Thank you for another incredible
“Collaborating for a Cure”
Monday, June 2, 2025 • 9:00 AM PDT/12:00 PM EDT
An online event for people living with scleroderma and those who care about them.
Watch the 2025 Patient Forum Sessions Now!
Understanding Scleroderma – The Essentials, with Dr. Marcin Trojanowski
Starting a Nutritional Journey in Scleroderma, with Dr. Elizabeth Volkmann
Scleroderma Research in Action – Understanding Clinical Trials, with Dr. Gregory Gordon, Dr. Dinesh Khanna, Dr. Lauren Reinke-Breen, and Dr. Kremena Simitchieva
Cell Therapy in Scleroderma – Exploring Tomorrow’s Possibilities, with Dr. Luke Evnin, Dr. Ryan Crisman, and Dr. Elaine Karis
Raynaud’s and Digital Ulcers – Biology and Treatment Strategies, with Dr. Tracy Frech
Scleroderma Lifehacks, with Community Members
The Scleroderma Research Foundation Patient Forum, “Collaborating for a Cure,” is a yearly online, half-day forum with new information about scleroderma and research that anyone can attend for FREE. Learn about advances in treatments, disease management, clinical trials, and more.
The forum features educational sessions on scleroderma symptom management, new developments in scleroderma research, and your role in finding a cure for scleroderma:
-
Informative sessions presented by leaders in the field of scleroderma research and medicine
-
Live Q&A following each presentation
-
Interactive games and activities to win prizes
Watch the Past Scleroderma Research Foundation Patient Forums on YouTube
2024 Highlights
Non-Pharmacologic Management of Scleroderma, with Dr. Ankoor Shah
Stem Cell Transplant in Juvenile Scleroderma, with Dr. Kathryn Torok
Heart Disease in Scleroderma, with Dr. Monica Mukherjee
2023 Highlights
Essentials of Clinical Trials – A Patient’s Guide, with Dr. Peter Merkel
Understanding Scleroderma Vascular Biology, with Dr. Tracy Frech
CONQUEST, a Platform Clinical Trial, with Dr. Dinesh Khanna and Dr. Toby Maher
2022 Highlights
Genomics & Scleroderma, with Dr. Dan Kastner, Dr. Kathryn Torok, Dr. Pravitt Gourh, and Dr. Francesco Boin
What You Need to Know About Scleroderma & Research, with Dr. Lorinda Chung
Fibrotic Lung Disease in Scleroderma, with Dr. Dinesh Khanna
The SRF Patient Forum, Scleroderma Awareness Month, and YOU
Because of our singular focus on understanding scleroderma, the SRF has the most up-to-date and relevant information about scleroderma complications, treatments, and related research. Everyone should have access to this information. That’s why we created the SRF Patient Forum as a part of our efforts for Scleroderma Awareness Month—so that you’re armed with the most relevant facts about scleroderma, all while the search for a cure continues.
Spread the word by sharing what you’ve learned or your story, using #SayScleroderma on social media during Scleroderma Awareness month and beyond.
Thank you to the following generous sponsors of the 2025 SRF Patient Forum.
Diamond
Platinum
Silver
Interested in becoming a sponsor for 2026?
For more information contact the SRF at info@sclerodermaresearch.org
