Behind the Mystery of Scleroderma

From the Balancing Act on the Lifetime network

Raising awareness of scleroderma and the need for research through broadcast TV.


We’re excited to share that the Scleroderma Research Foundation was featured on Behind the Mystery, a recurring series devoted to rare and genetic diseases, airing on The Balancing Act on the Lifetime network. This episode, for Rare Disease Awareness Month 2023, premiered on February 20th and aired again on February 28th for Rare Disease Day.

Now you can watch the video, Scleroderma Research Foundation featured, “Behind the Mystery.”

Everyone should know what scleroderma is and does.

Scleroderma is a rare autoimmune disorder involving many systems in the body. It causes inflammation that leads to hardening and tightening of the skin and connective tissues. In the most serious cases, there can be damage to the heart, lungs, and digestive system—sometimes with lethal consequences.  

 In 1987, scleroderma patient Sharon Monsky founded the Scleroderma Research Foundation (SRF) with the purpose of finding a cure. Although she passed away from disease complications in 2002, her mission lives on today. Behind the Mystery spoke with founding SRF Board Member Susan Feniger about her friendship with Sharon and how the SRF continues to drive research forward.   

They also sat down with scleroderma patient, Melissa, who shared how her diagnosis has impacted her life, and spoke to Dr. Lorinda Chung, of the Stanford University  School of Medicine, to understand the many forms of the disease. 

Thanks in large part to our community of researchers, patients, advocates, and donors, research is progressing faster than ever before, bringing us closer to a cure.  

Get to know the people featured in the video, “Behind the Mystery.”

Susan Feniger
Susan Feniger

SRF Founding Board Member

Meet Susan
Melissa Tarantino

Scleroderma patient & Cure Crew member

Meet Melissa
Dr. Lori Chung

SRF-funded investigator, Stanford University

Meet Dr. Chung

Learn more about scleroderma.

This complex disease can take many forms, and everyone has a different experience.

More Information