About the Scleroderma Research Foundation


The SRF Board of Directors


Scleroderma Research Foundation Staff


Remembering Bob Saget


Scientific Advisory Board


The Scleroderma Research Foundation Story


For Hope

We are, and always have been, singularly focused on finding a cure for scleroderma.

Our Story

The Scleroderma Research Foundation (SRF) was founded in 1987 by Sharon Monsky, an entrepreneur, businesswoman, and person with scleroderma. Guided by Sharon’s passion for a cure, we have become the largest nonprofit investor in scleroderma research in the United States.

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Annual Report

In our yearly publication, you can find financial highlights, read about research projects, learn about the impact of philanthropy, and more.

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Board of Directors

The SRF is led by a dedicated and active Board of Directors. While the individual members come from many different professional backgrounds and bring diverse talents to the SRF, they are united by their passion to improve the lives of people living with scleroderma.

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Our professional staff bring passion, expertise, and hard work to help accelerate the pace of medical discoveries and keep the scleroderma community informed.

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Scientific Advisory Board

The SRF’s Scientific Advisory Board is comprised of some of the most highly-regarded scientists in the country. Their vision and dedication to the SRF and to scleroderma research ensures that our research program remains highly-focused, nimble, and impactful.

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Our Donors

We are grateful for our community of donors who advance our scleroderma research. The SRF research program is 100% funded by philanthropy.

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Frequently Asked Questions

We hope we can answer some of the more commonly asked questions.

Go to the FAQ