I’ve Been Diagnosed with Scleroderma. What Do I Do Now?
Your primary care doctor can review your symptoms and do initial testing. Once a scleroderma diagnosis is made, you may be referred to see a rheumatologist. Ongoing scleroderma treatment might be with any of the following:
- General Internist, Family Medicine Doctor, or your primary care provider
- Rheumatologist: treats rheumatic and autoimmune diseases
- Dermatologist: treats diseases of the skin, hair, and nails
- Gastroenterologist: treats diseases of the digestive system
- Orthopedist: treats bone and joint disorders
- Pulmonologist: a lung specialist
We encourage scleroderma patients to receive care at a specialized Treatment Center. At these centers, different specialists work together to coordinate care.
CLINICAL TRIAL PARTICIPATION
Join the quest to advance systemic sclerosis research through CONQUEST.
Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.
More Resources
Complications and Treatments
There are various complications and conditions associated with scleroderma.
Treatment Centers
Patients who are diagnosed with scleroderma are encouraged to receive care at a specialized Treatment Center.
Webinar Series
Scleroderma Research Foundation collaborates and co-hosts free online webinars providing scleroderma health, wellbeing, and COVID-19 information.
MAKE A DIFFERENCE
Join the Cure Crew!
Cure Crew is a grassroots volunteer program with the goal of raising funds and awareness for scleroderma research. You can make a difference to the thousands of people living with scleroderma.
