What is Scleroderma?

Information for Patients and Their Caregivers

Many patients hear the word “scleroderma” for the first time when they receive a diagnosis. With the diagnosis comes many questions, and the Scleroderma Research Foundation is committed to providing the information and answers this community needs.

Patient Emily Hinderer, who raced in the Chicago Marathon in October of 2018

Whether you are a newly diagnosed patient, or one who has lived with scleroderma for many years, this site is designed to help you:

  • Better understand your condition
  • More effectively manage symptoms
  • Communicate with your healthcare providers
  • Improve your quality of life

In this section, you can explore information on what scleroderma is, how it is diagnosed, and how it can be treated. Learn about associated conditions like Raynaud’s phenomenon, pulmonary arterial hypertension (PAH), skin ulcers, or joint stiffness.