Scleroderma Awareness Month
June 2021

Why #SayScleroderma?

Because not enough people know what scleroderma is or does.

Because lack of awareness causes delays in treatments and diagnoses.

This is why we’re launching #SayScleroderma for Scleroderma Awareness Month. Throughout June, we’ll be featuring stories from community members on our social media, along with various ways you can make a difference by using your voice and influence. #SayScleroderma.

Meet the people.

People who live with scleroderma share their experiences. Check back for full stories throughout the month.


Diagnosed in 1998

“Scleroderma has changed my life for the better and the worse simultaneously.”

Read Liz's Story

Diagnosed in 2015

“I do not want future generations to have this bombshell diagnosis dropped on them: “You have Scleroderma” and have no clue what that means for them.”

Sophie Anne

Diagnosed in 2019

“I am still young and I really want a cure to be found.”

Read Sophie Anne's Story

Diagnosed in 2019

“People just aren’t aware of scleroderma. That’s why I’m very willing to tell my story.”


Diagnosed in 2019

“To me the word scleroderma means fight like hell. Any meaning, latin or otherwise, just doesn’t matter.”

Read Ile's Story

Spread awareness.

Post a video of you saying the word and what it means to you on social media, talk to someone in your life about this disease, or share one of our #SayScleroderma posts. Tag us (@srfcure on Facebook, Instagram, Twitter, and Scleroderma Research Foundation on LinkedIn) so that we can amplify your voice if possible! Or, send us an email at and let us know how you’ve made an impact.

Help find a cure.

Take making a difference to the next level by supporting the most promising research.

Join the community.