Why #SayScleroderma?
Because not enough people know what scleroderma is or does.
Because lack of awareness causes delays in scleroderma treatments and diagnoses.
Because scleroderma must END.
Launched by the SRF, #SayScleroderma is a collaborative movement dedicated to making this disease known. Focused on Scleroderma Awareness Month in June, this campaign highlights lived experiences, scleroderma facts, and ways you can make a difference. But when June ends, spreading awareness doesn’t need to stop. Let’s continue to #SayScleroderma, until we one day find a cure.
How You Can #SayScleroderma
Want to get involved? Here are some ways to make your voice heard and resources to support your efforts.
📹 Share Your Story: Post a video on social media saying “scleroderma” and why awareness is important to you. Check out our social media toolkit for more ideas!
💬 Start Conversations: Talk to your friends, family, and colleagues about scleroderma. Every conversation counts.
👤 Add a Profile Frame: Show your support proudly by updating your social media profile picture with our special #SayScleroderma profile frame.
📣 Spread the Word: Share our #SayScleroderma social media posts and tag us (@srfcure) to help us reach even more people.
We want to know how you’re participating! Send us an email at info@srfcure.org and let us know how you’ve made an impact. You can also give us a call at 800.441.CURE (2873).
Meet The People
People who live with scleroderma share their experiences.
Kate
Diagnosed in 2016
“Most people assume because I suffer from this disease, I’m fragile. I’m not.”
Jamie
Diagnosed in 2015
“I do not want future generations to have this bombshell diagnosis dropped on them: ‘You have scleroderma’ and have no clue what that means for them.”
Chip
Diagnosed in 1991
“I truly believe I am still here to help others in any way possible with this awful disease.”
Help Find a Cure for Scleroderma
Take making a difference to the next level by supporting the most promising scleroderma research.
LIVING WITH SCLERODERMA
Join the 2025 SRF Patient Forum
“Collaborating For a Cure” is a FREE online patient forum for people living with scleroderma and those who care about them.
