I’ve Been Diagnosed with Scleroderma. What Do I Do Now?
Your primary care doctor can review your symptoms and do initial testing for scleroderma. Once a scleroderma diagnosis is made, you may be referred to see a rheumatologist. Ongoing scleroderma treatment might be with any of the following:
- General Internist, Family Medicine Doctor, or your primary care provider
- Rheumatologist: treats rheumatic and autoimmune diseases
- Dermatologist: treats diseases of the skin, hair, and nails
- Gastroenterologist: treats diseases of the digestive system
- Orthopedist: treats bone and joint disorders
- Pulmonologist: a lung specialist
We encourage scleroderma patients to receive care at a specialized Treatment Center. At these centers, different specialists work together to coordinate care.
Watch Now: SRF Webinars on the Fundamentals of Scleroderma
Watch presentations from leading researchers and clinicians to learn more about what scleroderma is and an overview of management strategies.
CLINICAL TRIAL PARTICIPATION
Join the quest to advance systemic sclerosis research through CONQUEST.
Consider enrolling in the CONQUEST study, a scleroderma clinical trial for people with systemic sclerosis-associated interstitial lung disease (SSc-ILD). Participants help progress research to potentially uncover new SSc-ILD treatment options.
More Resources
Complications and Treatments
There are various complications and conditions associated with scleroderma.
Treatment Centers
Patients who are diagnosed with scleroderma are encouraged to receive care at a specialized Treatment Center.
Webinar Series
Scleroderma Research Foundation collaborates and co-hosts free online webinars providing scleroderma health, wellbeing, and COVID-19 information.