What You Should Know:
Research, Scleroderma, and Its Complications
Understanding scleroderma can feel overwhelming. That’s why we bring expert researchers and clinicians together to offer the latest updates in research, treatments, and management.
Watch Webinars from Scleroderma Research Foundation
Understanding Pulmonary Arterial Hypertension (PAH), with Dr. Roham Zamanian
Gastrointestinal Involvement in Scleroderma, with Dr. Zsuzsanna McMahan
Explaining CONQUER, with Dr. Tracy Frech and Dr. Shervin Assassi
Watch Sessions from the SRF Patient Forum
2025 Highlights
Understanding Scleroderma – The Essentials, with Dr. Marcin Trojanowski
Starting a Nutritional Journey in Scleroderma, with Dr. Elizabeth Volkmann
Scleroderma Research in Action – Understanding Clinical Trials, with Dr. Gregory Gordon, Dr. Dinesh Khanna, Dr. Lauren Reinke-Breen, and Dr. Kremena Simitchieva
2024 Highlights
Non-Pharmacologic Management of Scleroderma, with Dr. Ankoor Shah
Stem Cell Transplant in Juvenile Scleroderma, with Dr. Kathryn Torok
Heart Disease in Scleroderma, with Dr. Monica Mukherjee
2023 Highlights
Essentials of Clinical Trials – A Patient’s Guide, with Dr. Peter Merkel
Understanding Scleroderma Vascular Biology, with Dr. Tracy Frech
CONQUEST, a Platform Clinical Trial, with Dr. Dinesh Khanna and Dr. Toby Maher
2022 Highlights
Genomics & Scleroderma, with Dr. Dan Kastner, Dr. Kathryn Torok, Dr. Pravitt Gourh, and Dr. Francesco Boin
What You Need to Know About Scleroderma & Research, with Dr. Lorinda Chung
Fibrotic Lung Disease in Scleroderma, with Dr. Dinesh Khanna
More Resources for Learning About Scleroderma
I’ve Been Diagnosed, What Do I Do?
There is a lot to understand about this complicated disease. Here is a place to get started.
Complications and Treatments
There are various complications and conditions associated with scleroderma.
Treatment Centers
People diagnosed with scleroderma are encouraged to receive care at a specialized treatment center.
MAKE A DIFFERENCE
Join the Cure Crew!
Cure Crew is a grassroots volunteer program with the goal of raising funds and awareness for scleroderma research. You can make a difference to the thousands of people living with scleroderma.
