Partnerships start with a shared goal:
To enhance the quality of life for people with scleroderma.
While we continue the search for a cure, we are committed to ensuring that people living with scleroderma have the resources they need to navigate their journey. Education and awareness initiatives empower patients with knowledge, connect them to care, and strengthen their ability to advocate for themselves.
Industry partnerships help sustain these vital programs. Your collaboration ensures that as we advance toward a cure, every person affected by scleroderma has access to the most up-to-date information they need.
Creating Meaningful Collaborations
Our partnerships are guided by the following principles:
- We collaborate with organizations that share our commitment to improving the lives of those affected by scleroderma and serve the best interests of patients, families, and caregivers.
- We maintain open and transparent relationships with industry partners to uphold the trust of the scleroderma community and the public.
- We support partnerships designed to create mutual value—advancing our mission while helping you achieve therapeutic goals.
- We value partnerships that support meaningful impact, not transactional exchange.
Partnership Opportunities
Please note that the Scleroderma Research Foundation does not sell ad space.
Education & Awareness Campaigns
- SRF Website (35K+ views annually)
- Covers Symptoms, Diagnosis, Treatments, Scleroderma Centers, Video Library & Webinars
- Social Media: Facebook, Instagram, LinkedIn, X, Threads, YouTube, TikTok
- Awareness Messaging: FAQs, videos, patient stories, research updates
- Monthly e-Newsletters (9K+ subscribers | 43%+ avg. open rate)
- Disease Awareness campaigns: ILD, PAH, PF, Raynaud’s, Rare Diseases, SSc
- Webinars and Broadcasts: Educational content for both patient and scientific audiences
Clinical Trial Education & Resources
- Trial Finder Tool (Carebox): Matches patients to clinical trials, with Navigator assistance
- Clinical Trial FAQs: Definitions, process, patient role, myth-busting
- Educational Resources: Webinars, videos, patient guides, FDA & NIH glossaries
- Coming Soon: Patient journey stories, infographics, and more
The SRF Patient Forum
- 6 to 9 educational sessions by leading scleroderma clinicians & investigators
- Interactive experience: Live Q&A, interactive activities, surveys, polls, and patient resources
- Virtual Sponsor Booths: A customizable, dedicated webpage where you can showcase Clinical Trials, Patient Resources, and Advocacy
- Global Reach: 200–300+ live participants (76% patients) across 21+ countries | 4,200+ YouTube views post-event
- Completely FREE registration for all attendees
Cool Comedy • Hot Cuisine
- High-profile fundraising event hosted by Bob Saget for 30 years, now led by his family & friends
- National media coverage that raises unparalleled awareness globally (ABC News, E!, LA Times, USA Today, and more)
- Celebrity Performances: Recent performers include Bill Burr, Dave Chapelle, Michael Che, Counting Crows, Nikki Glaser, John Mayer, Howie Mandel, Kevin Nealon, Jeff Ross, and more…
CONQUER Registry
Details coming soon.
Benefits of Working Together
Here are just a few ways that we recognize your investment in the SRF and support your goals:
- Brand Visibility: Logo recognition on our website, annual report, and e-newsletters
- Social Media Engagement: Opportunities to collaborate on topical posts or PSAs
- Direct Community Connections: Connect with our patient volunteers who agree to serve as subject matter experts
- Tailored Recognition: Digital and physical recognition customized for each sponsorship opportunity
- Additional Bespoke Opportunities: Reach out to discuss other options that fit your needs
Interested in partnering with the SRF?
Contact donations@sclerodermaresearch.org today.
