Today is Rare Disease Day. This month, you all have done so much to raise awareness of what it means to live with a rare disease, like scleroderma. Scleroderma, or systemic sclerosis,…
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Your voice matters! The National Organization for Rare Disorders and the Rare Disease Diversity Coalition created a national survey for Rare Disease patients and caregivers. The survey focuses on people of color…
February is Black History Month. As we celebrate the rich culture of Black Americans, let’s raise awareness of how scleroderma affects this community. Research shows that African Americans tend to have…
In this month's edition of eNews, learn more about how you can create a will for free, what you can do to help raise awareness, and more. Read More
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Dr. Michael Whitfield shares why scleroderma research is entering a promising new era. As a Scleroderma Research Foundation funded investigator, Dr. Whitfield (of the Geisel School of Medicine at Dartmouth) is part...
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Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, nearly 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,…
Amazon has announced that they are discontinuing AmazonSmile on February 20, 2023. To everyone who prioritized the SRF while you shopped, thank you. You’ve helped us accelerate the pace of…
Do you live with scleroderma and have digital ulcers? You’re invited to complete a survey launched the World Scleroderma Foundation ad hoc GI Committee—led by SRF-funded investigator Dr. Zsuzsanna McMahan,…
Calling all scleroderma advocates—February is Rare Disease Awareness Month and Raynaud’s Awareness Month! The SRF stands with the rare disease community because being rare does not mean being alone. And…
