Rare Disease Day is here: Today, we are coming together to #SayScleroderma and shine a light on the 300,000 people in the U.S. living with scleroderma.
More than 300 million people worldwide live with a rare disease, yet many face significant delays in diagnosis due to a lack of scientific knowledge and quality information. The symptoms of rare diseases often overlap with more common conditions, leading to misdiagnoses and creating barriers to proper care. With over 7,000 rare conditions, including scleroderma, the rare disease community is vast—but awareness and research remain critical.
At the Scleroderma Research Foundation (SRF), we recognize the critical need for research in rare diseases, which is why we are committed to advancing the science behind scleroderma and working toward a cure.
Want to make an impact? You can:
🔷 Share educational resources
🔷 Tell your story on social media
🔷 Host a fundraiser or donate to research
To celebrate the power of awareness, we’re hosting a special giveaway! Let us know how you participated by filling out our form, and you’ll be entered for a chance to win.
