Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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We are honored to announce that CONQUER has enrolled its 1,000th participant! 🎉 In 2018, the SRF launched the CONQUER Registry (an acronym for COllaborative National QUality and Efficacy Registry)—a first-of-its-kind nationwide…
“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
On June 3, we held the 3rd annual SRF Patient Forum, "Collaborating for a Cure", featuring informative sessions and live Q&As from scleroderma experts. Did you miss the live event?...
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June is Scleroderma Awareness Month, and Barbara (@simply_beeinlove) from Thriving with Scleroderma is choosing to spread the word with our custom #SayScleroderma frame. Why does Barbara #SayScleroderma? "I #SayScleroderma because...
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June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness...
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In this edition of eNews, discover the new CAR T-cell therapy session at the upcoming Annual Patient Forum, read about the recent NIH workshop co-sponsored by the SRF, and join...
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It’s that time of year again! June marks Scleroderma Awareness Month— are you ready to spread the word? Why #SayScleroderma? Many people are unaware of what scleroderma is and the…
📣 Announcing a NEW SRF Patient Forum session about scleroderma CAR T-Cell Therapy! 📣 Register for "Collaborating for a Cure" on June 3 and join us at this free, online...
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Today, we celebrate and remember a very dear friend on his birthday—Bob Saget. He will live on in our memories not only for all the ways he inspired us and made us...
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