What makes researchers so dedicated to finding a cure? SRF-Funded investigator, Dr. Howard Chang of Stanford University, shares his perspective on making an impact through scleroderma research.
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Join us in welcoming the University of California, Los Angeles to the CONQUER Registry! UCLA recently joined the CONQUER Registry—a highly collaborative consortium of some of the largest scleroderma centers…
Your voice matters! The National Organization for Rare Disorders and the Rare Disease Diversity Coalition created a national survey for Rare Disease patients and caregivers. The survey focuses on people of color…
Dr. Michael Whitfield shares why scleroderma research is entering a promising new era. As a Scleroderma Research Foundation funded investigator, Dr. Whitfield (of the Geisel School of Medicine at Dartmouth) is part...
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Do you live with scleroderma and have digital ulcers? You’re invited to complete a survey launched the World Scleroderma Foundation ad hoc GI Committee—led by SRF-funded investigator Dr. Zsuzsanna McMahan,…
Learn how your donation helps SRF-funded researchers like Dr. Torok (University of Pittsburgh) push the envelope on cutting-edge studies like the juvenile scleroderma project—all to find a cure. Will you help...
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Last week during the American College of Rheumatology Conference in Philadelphia, the SRF hosted two meetings to convene Principal Investigators and Research Coordinators from all 17 institutions participating in the…
New research: a study based on data from the SRF-launched CONQUER Registry finds that gastrointestinal (GI) symptoms in those with systemic scleroderma are unrelated to scleroderma-specific medications. This study, led…
This year, we were proud to be a sponsor of the International Scleroderma Workshop, held in Boston on July 31-August 3, 2022. This workshop brings together scleroderma researchers, clinicians, and...
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In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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