New research: a study based on data from the SRF-launched CONQUER Registry finds that gastrointestinal (GI) symptoms in those with systemic scleroderma are unrelated to scleroderma-specific medications. This study, led…
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This year, we were proud to be a sponsor of the International Scleroderma Workshop, held in Boston on July 31-August 3, 2022. This workshop brings together scleroderma researchers, clinicians, and...
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In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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SRF funded-investigator Dr. Howard Chang of the Stanford University School of Medicine is working on an innovative project to understand disease-relevant mechanisms in scleroderma: his novel Twin Study is investigating differences in genetically identical twins where one twin has scleroderma and...
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Double your impact with a gift to our 2022 Research Challenge! We’re excited to share that SRF Board Chair, Luke Evnin, PhD, and Research Committee Chair, Deann Wright, have once again committed…
After two years of virtual meetings, the SRF's Science Workshop returned as an in-person event! This past weekend, over 50 clinicians and scientists gathered in San Francisco to discuss innovations in scleroderma...
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Meet Sarah Wood, the Clinical/Translational Research Coordinator at Vanderbilt University Medical Center. A recently graduated master's student who researched autoimmune diseases, she's now turning her focus to ending scleroderma. She...
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Anyone can be diagnosed with scleroderma, including children. Even though scleroderma usually manifests between the ages of 30 and 50, it affects approximately three out of every one million children,...
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In 2018, the SRF launched CONQUER (COllaborative, National Quality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of scleroderma patients. For those who live with scleroderma, participating in CONQUER is...
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Research is the best hope for finding a cure. This is why in 2018, the SRF launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of...
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