Jennifer was diagnosed with scleroderma in 2018—years after seeking help. “I started having Raynaud's attacks in 2013 along with other weird things like red blotches all over my face, later...
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Kick off Scleroderma Awareness Month by attending the SRF’s Collaborating For a Cure, our inaugural Virtual Patient Forum! On June 1st, we’ll be hosting our first ever half-day Virtual Patient Forum for all those…
It's National Volunteer Week and we want to say thank you to the SRF’s incredible Cure Crew, a grassroots volunteer community of scleroderma patients, friends, and families. You make a huge impact...
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When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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Today, we are deeply saddened to learn of the passing of Gilbert Gottfried. He was a good friend of late SRF Board Member Bob Saget, and so he also became…
In this month's eNews, we're sharing more about our new patient forum, "Collaborating for a Cure," along with information on new CONQUER centers (places where you can participate in research)...
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National Minority Health Month is here. April is an opportunity to raise awareness and encourage advocacy about how health disparities can affect people from racial and ethnic minority groups, including…
