Scleroderma Research News and Updates

The SRF Joins the Rare Disease Diversity Coalition

By April 1, 2022August 18th, 2022No Comments

National Minority Health Month is here. April is an opportunity to raise awareness and encourage advocacy about how health disparities can affect people from racial and ethnic minority groups, including those who live with rare diseases like scleroderma.

And so, we’re excited to share that we have joined the Rare Disease Diversity Coalition (RDDC)! The Coalition brings together rare disease experts, health and diversity advocates, and industry leaders to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on communities of color.

We look forward to collaborating with other rare disease organizations so that we can better serve our diverse scleroderma community as we work towards earlier diagnoses, better treatments, and, ultimately, a cure. To learn more about the RDDC, check out their website.