UPDATE: This event has now passed. Save the date: The Annual SRF Patient Forum is back this year on June 1, 2023! "Collaborating for a Cure," the SRF Patient Forum,...
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Thinking back to her early symptoms, Kierra (dx 2020) remembers how “simple things like walking became a chore. My body felt like it was breaking down and I couldn't figure...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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Today would’ve been the 69th birthday of Sharon Monsky, the SRF’s Founder. When she started this organization, she understood that a cure for scleroderma would probably not come in her lifetime. But she knew that funding…
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
Not enough people know what scleroderma is, or how to recognize its early signs. Even though it’s incredibly rare, everyone should know what to look out for. Early symptoms of scleroderma…
Did you know that approximately 15% of people living with scleroderma have Interstitial Lung Disease (ILD)? Next week, Wednesday, September 14 is National ILD Day. We're joining forces again with...
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Project Scleroderma, a longtime partner organization of the SRF that raises scleroderma awareness globally, recently premiered their new documentary created with the team at New Pace Productions. It’s called Run…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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