“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
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Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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It’s the rarest day of the year: #RareDiseaseDay! You all have blown us away with how you’ve engaged with raising awareness of rare diseases like #scleroderma. There are 6,000+ rare diseases,…
Nearly 90% of those with scleroderma have Raynaud’s symptoms. This is why Raynaud’s can be a “red flag” that helps lead to diagnosis and treatment of scleroderma. And for Aneila, dx…
February is Raynaud's Awareness Month (#RaynaudsAwarenessMonth), so let’s discuss the relationship between Raynaud's phenomenon (#RaynaudsPhenomenon) and #scleroderma. Raynaud’s phenomenon is a common condition, and most people with Raynaud’s will not develop scleroderma....
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February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Give a big round of applause to the SRF Cure Crew—in 2023 alone, they raised more than $158,000 for research! The Cure Crew is a grassroots group of volunteers that...
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Lorena was diagnosed with scleroderma in 2021, and she wants a cure found for this disease. “When I went to see my scleroderma doctor for the first time, I was…
In 2015, Mercy began to notice changes in her health. However, it wasn’t until 2017 that she received a definitive diagnosis: scleroderma. “I was progressing pretty quickly at the time,”…
"I lost a lot of me." This is what Cynthia, dx 2021, shared about living with scleroderma. It's just one of many reasons why she participates in research that accelerates...
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