Living with Scleroderma

Lorena’s Journey with Scleroderma

By December 6, 2023December 20th, 2023No Comments

Lorena was diagnosed with scleroderma in 2021, and she wants a cure found for this disease.

“When I went to see my scleroderma doctor for the first time, I was in a wheelchair…I was unable to walk long distance due to joint stiffness, pain, and shortness of breath,” says Lorena. Today, things are different. “With the help of all my doctors, I’m in a better place now.”

And this is why research matters to Lorena—because research is what enables her doctors to suggest better treatments and strategies to help her manage her scleroderma. Ultimately, Lorena looks to research “to find a cure for the disease so that no one else has to go through this debilitating condition.”

Thank you, Lorena, for sharing your story and experiences. We will continue to put research at the center of everything we do, for you and for everyone who is affected by scleroderma.