June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness can lead to delays in treatments and diagnosis. But we won’t accept that — by working together as a community, we can change the narrative and create real progress toward ultimately finding a cure for scleroderma.
To kick things off this month, in this video, Andrew talks about his journey with scleroderma, his experiences with a secondary condition called pulmonary arterial hypertension, and why he chooses to #SayScleroderma.
“Awareness of scleroderma and pulmonary hypertension is so important because you need to know how to listen to the signs in your body,” he says in the video. Thank you, Andrew, for sharing your story and passion for raising awareness.
Collaboration is key: This film was produced in partnership with Project Scleroderma. Our two organizations have joined forces to #SayScleroderma, because together, we can make a bigger difference than we ever could alone.
It’s time to make your voice heard —share what living with scleroderma means to you on social media, in your community, or during one-on-one conversations. #SayScleroderma so that one day, we’ll find a cure.