Living with Scleroderma

#KnowRaynauds with Johneshia, Marissa, And Lori

By February 19, 2021July 14th, 2021No Comments

This Raynaud’s Awareness Month we asked you to share your personal stories, tips, or life hacks with us, and we’ve been blown away by the response! Today, we’re spotlighting three scleroderma community members who stepped up to share about living with Raynaud’s:

1. Johneshia, on why raising awareness is so important: “It was 10 years before I was diagnosed…more education is needed. 10 years in agony is far too long.”

2. Marissa, with tips to be prepared and stay warm: “A pair of backup mittens in every bag and jacket! You never know when you will need them, even in the summer.”

3. Lori, with this creative life-hack: “With the complications of contractures and/or surgical interventions, finding mittens or fingerless mittens that work can be a challenge,” so she modifies socks by cutting toes out and creating a thumb hole. Lori says, “Yes, these leave the thumb uncovered, but in my case, the uncovered thumb hasn’t led to many problems.”

Thank you to Johneshia, Marissa, Lori, and the many others who have helped raise awareness by joining the Raynaud’s conversation.